Welcome

Welcome to our international Prader-Willi Syndrome Organisation (IPWSO) website where we hope you will find help and support, information, and some of the latest research about PWS. Our global family of parents, professionals, and friends has formed a dedicated partnership committed to enhancing the quality of life for people with PWS and their families. By networking and sharing information we aim to give our special children the best possible opportunities for living their lives to the fullest.

Currently our organisation has 81 member and associate member countries, representing well over 25,000 families. Being a member provides many advantages such as the opportunity to be part of a worldwide network of information and support. Every three years we hold our international PWS conference, hosted by different countries, where professionals, scientists and researchers are given opportunities for a universal exchange of research, experiences and ideas.  Spreading awareness so children  and adults with PWS can have a brighter future is a major goal of IPWSO. Our educational packages (General Awareness, Crisis, and Medical Awareness) cover a wide range of essential topics, and are distributed throughout the world in many languages. Education promotes the possibility for early diagnosis and early interventions in medical and behavioural management.

IPWSO is an organisation without borders, open to people of all origins and cultures. Please check our website to see if your country has a national association.  If not, contact us and we will assist you in forming an organisation and will connect you to other resources in your region as well as throughout the world. We would love to welcome you to our global family. We share a passion to do the very best by all of those with PWS and their families – wherever they may be in our world.

Suzanne Cassidy, MD
President