About-IPWSO
About IPWSO
In 1991, the first International Prader-Willi Syndrome Conference was held in the Netherlands and a few days later the International PWS Organization, representing 22 national associations, officially formed and registered in Sweden . Since then, we have grown in size...
Our Mission
IPWSO is politically neutral, with no discrimination as to race, sex or religion. It supports member associations in their efforts to: Improve the quality of life for all people with Prader-Willi syndrome and their families....
Membership
IPWSO Membership provides the following: The ability to be part of an international network striving for the same ends as national associations, but on a global scale The chance to attend the...
Statutes
INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION STATUTES STATUTES APPROVED AT GENERAL ASSEMBLY IN NEW ZEALAND (12/04/2004), CONFIRMED AT GENERAL ASSEMBLY IN ROMANIA AND...
Officers & Board Members
IPWSO Board President Suzanne Cassidy, MD, Clinical Professor of Pediatrics at the University of California, Irvine, USA Vice President ...
Songs
ICH AUCH Composition by Giorgio Fornasier, lyrics by Pam Eisen FLY HIGH Composition by Giorgio Fornasier, lyrics by Linda Thornton MY NAME'S NOT WILLY This rap song is written and performed by Big Tiny, Trey Smith, Lauren Fleming,...