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About-IPWSO
About IPWSO
In 1991, the first International Prader-Willi Syndrome Conference was held in the Netherlands and a few days later the International PWS Organization, representing 22 national associations, officially formed and registered in Sweden . Since then, we have grown in size...
Our Mission
IPWSO is politically neutral, with no discrimination as to race, sex or religion. It supports member associations in their efforts to: Improve the quality of life for all people with Prader-Willi syndrome and their families....
Officers & Board Members
Chief Executive Giorgio Fornasier, Italy contact email IPWSO Board President Suzanne Cassidy, MD...
Statutes
INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION STATUTES STATUTES APPROVED AT GENERAL ASSEMBLY IN NEW ZEALAND (12/04/2004), CONFIRMED AT GENERAL ASSEMBLY IN ROMANIA AND AMENDED AT...
Member Countries
Looking for a country? Click on the first letter of the alphabet to take you there: A B C ...
Membership
IPWSO Membership provides the following: The ability to be part of an international network striving for the same ends as national associations, but on a global scale The chance to attend the...
Looking for translations?
Prader-Willi Syndrome MEDICAL ALERTS booklet is a small, pocket-sized booklet designed to fit into a handbag as a quick resource for doctors, caregivers, parents. Information contained may be vital to helping during a crisis or when medical knowledge is limited....
Free Diagnosis BIRD
BIRD is an extraordinary foundation established by Mauro Baschirotto's parents after he died from an undiagnosed rare disease. He was born in 1970 to parents, Guiseppe and Anna, who, for fifteen years struggled with not knowing what his illness was,...
Songs
ICH AUCH Composition by Giorgio Fornasier, lyrics by Pam Eisen FLY HIGH Composition by Giorgio Fornasier, lyrics by Linda Thornton MY NAME'S NOT WILLY This rap song is written and performed by Big Tiny, Trey Smith, Lauren Fleming,...