Links

Links to other support agencies, organisations or associations. Please contact us if you would like to share a link.

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Eurordis, Rare Diseases, Europe www.eurordis.org

Eurordis, the European Organisation for Rare Diseases, is a nongovernmental, patient-driven alliance
of patient organisations working in the area of rare diseases. Eurordis is the only European rare
disease patient organisation, with more than 350 member organisations in 39 countries.
Eurordis' mission is to build a strong pan-European community of patient organisations and people
living with rare diseases, to be their voice at the European level, and - directly or indirectly - to fight against the impact of rare diseases on their lives.

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National Organisation for Rare Diseases: http://www.rarediseases.org/