MY NAME'S NOT WILLY

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(This rap song is written and performed by Big Tiny, Trey Smith, Lauren Fleming, Tad T, and The Grand Master of Mix, Scott Garrison, PWSA USA)

This song goes out to all our bothers and sisters out there with Prader-Willi Syndrome. We wanted this song to:
Educate people about Prader-Willi Syndrome
Communicate the feelings you have to deal with having PWS
Stop the world from labelling you
Most importantly, get you to stop labelling yourself!
We want you and everybody else in the world to know that Prader-Willi Syndrome is what you have, not who you are. Your life is about so much more than just surviving. Your life has purpose! You have a destiny!

It doesn't matter if anybody else knows how valuable you are, as long as you know it yourself.

You see, you're not who you think you are
You're not who other people think you are
You're not even who you think other people think you are.
YOU ARE WHO GOD SAYS YOU ARE!
And God says that you are PRECIOUS in his sight!

The day I was born, my parents got the news;
My fifteenth chromosome had blown a fuse.
I was born with Prader-Willi, so weight's tough to lose,
But you ain't gonna hear me singin' the blues.

There is no cure, no help from the do's.
All my parents can do is buy some new locks,
‘cause I always be thinkin' about that ice box,
So they lock it all down, as tight as Fort Knox.

I've got Prader-Willi, but my name's not Willy,
My name's not Willy, my name's not Willy!
I've got Prader-Willi, but my name's not Willy,
My name's not Willy, my name's not Willy!

You know my appetite is always testin' me,
But I ain't gonna let it get the best of me,
‘cause I know my life has got a destiny,
So you gotta take the time to know the rest of me.

Some kids make fun of me, ‘cause I'm not the same.
Like I had a choice Dawg, I'm not to blame.
See havin' Prader-Willi is not the true shame,
It's your bustin' on me and don't even know my name.

This song about a syndrome I can't ignore,
‘cause my appetite and me is always at war.
Sometimes I get so mad, that I slam the door,
It makes my emotions so hard to store.

Havin' Prader-Willi is my cross to bear,
But I'm not cryin' about it, ‘cause this I swear:
It ain't stoppin' me, ‘cause to dream I'll dare,
My life is like a diamond, so precious and rare.

Yeah, sometimes I'm made, but sometimes I'm glad.
Emotions and hunger I wish control I had.
The point of this song is not to make you sad,
But for opening minds and the awareness it will add.

My syndrome brothers and sisters are hopin' for a cure,
Prader-Willi should be stopped, that's for sure.
Annihilate it, like the Terminator,
We'll all be set free, so let me hear ya' holler!

Now here's my final statement, excuse me m'am,
Prader-Willi's what I got, not who I am
If you think you know me, take a second look
Just lookin' at the cover, you can't judge a book.

There's a lot more to me, than meets the eye
I have dreams for my life, my only limit's the sky.
So if you really want to know me, come close and take a peek
One promise I can make you, I'm truly unique!