Member Countries
(countries who do not yet have a PWS Association, or who are not subscribed voting members of IPWSO, but who are affiliated in name)
A B C D E F G H I J K M N O P Q R S T U V W X Y Z
Associate Members
Albania
Professional delegate: Lindita Grimci MD. PHD. Pediatric Endocrinologist.
University Hospital Center "Mother Teresa" Pediatric Deparment. Rd. Dibrës Nr. 370, Tiranë, Albania.
Home: Bul. "Zhan D'Ark", Kulla 1, tel. 00355 (4) 265 534, Mobile 00355 (0) 68 2066 584,
Algeria
Professional delegate: Dr. Karima Hamdani
Chemin Sidi Yahia cité des 20 logts Bt
1 N°1 Bir Mourad Rais Algiers Algeria
Tel. :+ 213 21 56 26 59
Bolivia
Professional delegate: Dr. Ramiro Alvarado Neurosurgeon,
P.O. Box 1701, La Paz Bolivia
Tel. +591 22 713511 (home), +591 22 423708 (work), Fax +591 22 423708
Parent delegate: Luz Elizabeth Tejada Velez
Casilla N.6861, La Paz - Bolivia
Tel. +591
Boznia Herzegovina
Professional delegate: Alma Toromanovic, MD
Division of Endocrinology,
Department of Pediatrics,
University Clinical Center Tuzla
Trnovac bb Tuzla 75000
Bosnia and Herzegovina
Tel. +387 35 255 132, Fax: + 387 35 303 700
Bulgaria
Professional delegate: Dr Radka Tincheva,MD
Head of Department of Clinical Genetics
University Pediatric Hospital
Blvd. Ivan Geshov 11, 1606 Sofia, Bulgaria
Parent delegate: Stanimir Tsonev
7, Raina Knayginya Str. fl. 4 , ap. 11
Sofia - 1309, Bulgaria
home + 35924808244 , mob. +359888642472
China
Professional delegate: Jinghua Chai, M.D., M.Sc.,
348 Inwood Road, Ardmore PA 19003, USA., Tel. +1 610-658-2885,
DR. Hongmei Song, Dept.of Pediatrics
Peking Union Medical College (PUMC) Hospital
No 1 Shuaifuyuan,Dongcheng
Beijing 100730, China
Tel(and Fax):86-10-65296271
Colombia
Professional delegate: Dr Alejandro Velàsquez, endocrinologo pediatra,
Calle 2 sur # 46-55 Fase 1. Clinica Las Vegas, Consultorio 223- Medellìn- Colombia
Tel 2683763 Celular 3108398091.
Parent delegate: Jorge Restrepo
Apartado Aèreo 11667, Carrera 32B#10-110
Apt 617 Medellìn- Colombia
Telèfono casa: 574-2687886
Telefono celular 57-315-5366897
Costa Rica
Parent Delegates:
Kensy jimenez Acuña
Telefono: 8312-61-16
Oscar Sanchez Salas
Telefono:8357-82-72
Croatia
Professional delegate: Prim. Dr.Jasenka Ille,
KBC Zagreb, Rebro, Kispaticeva 12
10000 Zagreb, Croatia, Tel. +385 1 2388331
Parent delegate: Ivka Cop
Bukovacka 158, 10000 Zagreb, Croatia
Tel. +385 91 5190661,
Cuba
Professional Delegate: Alis León Oliver
Avenida 41 número 3805 entre 38 y 40, Caimito, Provincia La Habana, Cuba
Parent delegate: Ilieva Vazquez Bello
9525 SW 24 St. Apt. D-102
MIAMI FL 33165, USA, tel. +1 305 207-5739
Ecuador
Parent delegate: Jorge Oswaldo Zúñiga Gallegos, Urbanización Carlos Montufar,
Calle Isla Puná No. 8, San Rafael,
Casilla Postal No. 17-23-159, Quito Ecuador
Tel. +593 2 2860-985, +593 2 2865-047
Other contact: Armando Castellanos
Reina Victoria 17-37 y La Niña
Quito-Ecuador, Telefono: (593 2) 2683 647
Egypt
Professional delegate: Osama K Zaki,MD
Cytogenetics Unit. Dept Of Pediatrics,
Ain Shams University, 8, Kamal Raslan St. Heliopolis, Cairo 11771 Egypt,
Tel: +20 2 2717445, Fax: +20 2 2731933
Parent delegate: Omnia Mourad
One Mohamed El Nadi Street
Makram Ebeid, 6th Zone, Nasr City, Egypt
Honduras
Professional delegate: Dr. JOSE ARMANDO BERLIOZ PASTOR, Colonia Altos de Miramontes, Diagonal Aguan # 2751
Tegucigalpa, M.D.C. Honduras, C.A.
Phones: (504) 232-4429 (Home);
(504) 221-1939 (Office); (504) 992-4569 (Mobile).
Hungary
Parent delegate: Zsuzsanna Szalay
Hungary, 2053, Herceghalom,
Arany János u. 25.
Phone: +36 70 5774759
Iceland
Professional delegate: Stefan Hreidarsson MD
Medical Director State Diagnostic and Councelling Centre. .Digranesuegur 5, 200 Kopavogur, Iceland, Tel; 354 510 8400,
Jordan
Professional delegate: Dr. Musa Suliman
King Hussein Medical Center / Pediatric Department / Amman / Jordan
Post Office 1574, Jordan - Zarqa 13110
Mobile phone: +777 326 366
Kazakhistan
Parent delegate: Askar Sadykov Turtubekovich
23 Serikbaev st.146
070010 - Ust'-Kamenogorsk, Kazakhstan
Tel. 8-10-7232-540647, Mobile +7-777-5100902 E
Latvia
Professional delegate: Dr. Iveta Dzivite
Head of Children's Endocrinology
Centre of Latvia, 45, Vienibas gatve,
Riga Latvia LV - 1004
tel: + 3717064406, tel/fax: +371 7064436
Lebanon
Professional delegate: Dr Eliane Khallouf
Pediatric department.
Hotel Dieu de France Hospital
Beirut. Lebanon. Tel. 009613808805.
Parent delegate: Rita Sfeir
Sanofi-Aventis, Georges Picot street
Starco Building Bloc B first floor
Beirut P.o. box : 110 697. Lebanon
Tel +961 1 374 555 ext 378
Mobile +961 3 496878,
Libya
Professional delegate: Nadia Omar Alghazir
Paediatric endocrinologist
P.O box : 7932 Libya Furnaj - Tripoli
Telephone number : +218913221257
Lithuania
Professional delegate: Dr. Natalja Tkacenko
Mobile +370-684-01070
Macedonia
Professional delegate: Dr. Elena Sukarova Angelovska,
Department of endocrinology and Genetics, Pediatric Clinic,
Vodnjanska 17, Skopje, Macedonia
Parent delegate: Kostoska Valentina
Sopiste No 54 A, 1000 Skopje, Macedonia
Malaysia
Professional delegate: Dr. Yew Sing Choy
Pediatric Institute Kuala Lumpur Hospital
Jalan Pahang , 50586 Kuala Lumpur, Malaysia
Tel +60 3 261 55555 ext 6889, Fax: +603 2694 8187,
Parent delegate: Norliza Mohd Din & Azhar Talib, Nr. 25, Jalan Warisan Puteri A3
Taman Warisan Piteri, 71770 Seremban, N.Sembilan, Malaysia Tel: 017-3333940/012-3395232,
Moldavia
Professional delegate: Dr. Victoria Sacara
Apt. 144, 21 Dacha str., Kishinev, Moldova MD 2038, Tel: +373 719670,
Parent delegate: Arpenti Diana
Str. Nicolae Milescu Spataru 3 ap. 137
Chisinau, 2044, Republica Moldova
Other contact: Baranova Tatiana
Apt.12, 23 Renashterey str.
Kishinev, Moldova 2005, Tel. + 226386
Morocco
Professional delegate: Prof. Gaouzi Ahmed
Departments of Paediatrics,
Unit of paediatric endocrinology,
Children's university Hospital Rabat
Office: Avenue Ibn Rochd
B.P. 6542 Rabat -Institut
Home Address: app n°9 Imm. Chifaa ,
Bd Al arar Hay Riad Rabat Morocco
Tel. 037 67 13 25 (work),
Tel. (212) 037 71 26 87 (home),
Parent delegate: Mme Fatima Mandili
6 bis Rd doukkala rue Soulaimane Azzmi Appt
4 Qu Hopitaux 20000 Casa, Maroc.
Nicaragua
Parent delegate: Alicia Rodriguez
13756 SW 48 ST., Miami, Florida 33175:
USA, Mobile +1 305-318-6087
Nigeria
Parent delegate: Charles Ch. Mayberry,
Erdkampsweg 6, 22335 Hamburg , Germany
Tel +49 40-5204217, Fax +49 40-5203317
Oman, Sultanate of
Parent Delegate: Mansoor Hamed
Pakistan
Professional delegate: Dr. Jamal Raza
Associate Professor, National Institute of Child Health, Rafiquee Shaheed Road, Karachi 75510
Karachi, Pakistan
Tel: 9201261-4 ext 223, Mobile: 0333-2184376
Parent delegate: Ghazala Nomani
26 Cedar St., Bergenfield, NJ 07621 USA
Tel +1 201 244 9026,
Panama
Professional delegate: Dr. Liliana Angelica Neil Burgos, Pediatra Endocrinóloga,
Hospital de Especialidades Pediátricas,
Caja del Seguro Social. Vía España, Panamá
Tel. +507 260-1290, Mobile +507 6618 9397.
Parent delegate: Kathia Díaz Arias
San Miguelito Samaria, Sector 4b, casa 161
Panama, Tel: +507 273 9591
Peru
Professional delegate: Dr. Alberto Teruya Gibu, Av. Iquitos 293 La Victoria,
Lima-Peru, Tel. +51-1-4248007
Parent delegate: Rosalva Espino Moscoso
José Pardo 159, Urb. Astete, San Miguel
LIMA,PERU, Tel. +51 1 4206367
Philippines
Parent delegate: Regina Infante
Blk.3 Lot 10 Phase 5 Adalia Street,
Elvinda Village, San Pedro, Laguna,
Philippines 4023, Tel. + 63 917 5011915,
Other parent contact: Vienne Go Ang
#45 11th Street, New Manila, Quezon City, Philippines.
Peurto Rico
Professional delegate: Alberto Santiago Cornier, M.D. Ph.D. , Ponce School of Medicine
Genetic Division, P O Box 7004
Ponce PR 00732, Puerto Rico
Tel. +1 (787) 840-2575 ext. 2218/2213/2156
Fax: +1 (787) 840-5698
Parent delegate: Elsa Alago
Calle El Cerezal F-5 , Jardines de Miramar,
Isabela PR 00662 Puerto Rico
+1 (787) 830-0439 Home, +1 (787) 645-5483 mobile, +1 (787) 834-8000 ext. 2214 Work
Portugal
Professional delegate: Drª Clara Loff
Hospital D. Estefânia in Lisbon,
Tel. +351 939 290 679
Parent delegates: Paula Cristina de Sousa Raimundo Barreiro Rebelo
Rua Cidade de Cabinda, nº 22 - 6º Esq.
1800 - 080 LISBOA, PORTUGAL
Tel. +351 218 536 698, +351 967 617 824
+351 937 617 824,
Saudi Arabia
Professional delegate: Dr. Mazin S. Fakeeh MD, FRCP. Dr. Soliman Fakeeh Hospital.
Palastine st. Jeddah, 21461. Pobox 2537.
Saudi Arabia, Tel. +9662-6655000
Singapore
Professional delegate: Denise Li-Meng Goh,
The Children's Medical Institute, National University Hospital, Assistant Professor, Dept of Pediatrics, National University of Singapore
5 Lower Kent Ridge Road, S 119074, Singapore
Tel: (65)-6772-4420, Fax:(65)-6779-7486
Parent delegate: Eric & Lina Khoo
Blk 721 Pasir Ris St 72 #07-115 S510721
Singapore, tel +65 98180582 (hp).
Slovenia
Professional delegate: Dr. Primoz Kotinik
Parent Delegate: Tina Volk, President of Slovenia PWS Association
Thailand
Professional delegate: Duangrurdee Wattanasirichaigoon, MD
Faculty of Medicine Ramathibodi Hospital, Department of Pediatrics,
270 Rama 6 Rd., Bangkok 10400 Thailand
Tel +66 2201 2782, fax +66 2201 1850
Parent delegate: Jarucha CHAIYASORN
39/279 Moo.11 Klongkhum Bungkhum Bangkok.
10230 Thailand Tel No. 66-2509-4650
Parent delegate: Rungson SUWANVICHIT
105/199 Wangthong House
NavamintaraRd.,Klongkhum Bungkhum,
Bangkok 10240, Thailand
Tel No.66-2374-7455
Turkey
Professional delegate: Prof.Dr. Koray Boduroglu
Hacettepe University Faculty of Medicine
Department of Pediatrics, Division of Genetics
06100 Sihhiye, Ankara, Turkiye
Fax: 0090 312 3115522, Tel: 0090 312 3051173
Uganda
Professional delegate: Dr. Edison Arwanire Mworozi MBChB, M MED
Senior Consultant Paediatrician/Honorary Lecturer Clinical Head
Department of Paediatrics abd Child Health
Mulago Hospital/ Makerere University Medical School, P.O. BOX 7072,
KAMPALA - UGANDA
Tel: 256-41- 542766/ 531875 (Office)
Fax: 256-41-534037, Mobile: 256-772-619355
Uzbekistan
Professional delegate: Shakhrizada T. Sultanova, Academic Abdullaev Street 56
Tashkent, Repulic of Uzbekistan
Te. +998 71 269 1668,
Mobile +998 90 315 7338
Vietnam
Professional delegate: Prof. Nguyen Thi Hoan
Head of Endocrinology-Metabolic-Genetic Department, 18/879 La Thanh - Dong Da
Hanoi, Vietnam
Tel. +84 4 7752910, Fax +84 4 7754448
Yemen
Professional delegate: Ahmed Al-Shehari MD
Pediatric consultant, Head of pediatric departement in Thamar University, Coordinator for Control Genetic Disease in Yemen,
B.O. BOX ;- 12715 Sanaa -Yemen
el.: 00967711655660
Parent delegate: Yasser Abdurazak Derhim
Yemen-Sana'a-Hada'a Street
Mobile No:+967-71410700
Looking for a country? Click on the first letter of the alphabet to take you there:
A B C D E F G H J K L M N O P Q R S T U V W X Y Z
To contact any of our delegates, please enquire through our "contact us" page
Member countries of IPWSO
Argentina
Professional delegate:
Maria Del Valle Torrado, MD
Coordinator of PWS Interdisciplinary Team
Garrahan Children's Hospital
Combate de Los Pozos 1889
ZP1240 Buenos Aires City
ARGENTINA
Parent delegate: Guillermo Jose Smith
Buelta de Obligado 2647 - 5 A (C1428ADQ)
Buenos Aires, Argentina website: www.praderwilliARG.com.ar
Armenia
Professional delegate: Albert Matevosyan M.D., Ph.D. Professor, Head of the Department of Medical Genetics, Yerevan State Medical University after M.Heratsi, Head of the Republic Center of Medical Genetics, President of the "Neurohereditary Diseases" Charity Association
Address: 9a, Parpetsi st. apt. 6. "NHD"ChA" NGO, Yerevan, Armenia, 375002
Tel.: +37410 532480, +37491 212890 (mobil)
Fax.: +37410 535424
Australia
Professional delegate:
Dr. Ellie Smith,
23 - 25 Neil St., Bundeena NSW 2230 Australia
Tel.+61 29527 9795 (home) ,+ 61 2 9845 3237 (work),
Parent delegate:
Janine Lowe
website: www.pws.org.au
Austria
Professional delegate:
Dr. Barbara Utermann
Dr.-Karl-Ottstr.9
A-6071-Aldrans
Austria
Tel:0043 10 392725
Parent delegate:
Dr.Verena Wanker-Gutmann
Schloß Frohnburg, Hellbrunner Allee 53,
A-5020 Salzburg, Austria
Tel: +43 662 624 142, Cel. + 43 699 11529914
website: www.prader-willi-syndrom.at
Belgium
Professional delegate:
Annick Vogels, M.D., Ph. D., C.M.E. KU Leuven, Herestraat 49
B-3000 Belgium, Tel: 32 16 345903,
Parent delegate:
Wilfried De Ley,
Prader-WilliVereniging vzw Belgium,
Boechoutsesteenweg 54, B-2540 Hove, Belgium
Tel: +32 3455 6691, Fax: +32 3 221 07 23
Canada
website: http://www.fpwr.ca
Professional delegate: Dr. Glenn Berall
BSc, MD, FRCP(C)
4001 Leslie Street, Toronto, ON M2K 1E1
Canada, Tel: +1 416-756-6222
Fax: +1 416-756-6853,
E-mail: gberall@nygh.on.ca
Parent delegate: Joanne Taylor
11-4524 Eldorado Court, Kelowna B.C.
Canada V1W 1G3
Tel. +1-250-764-1009
E-mail: taylorgj@telus.net
Chile
Professional delegate: Dra Fanny Cortes
Tabancura 1515 Of 210, Vitacura,
Santiago
Tel: +56.2.678.1478
Fax: +56.2.215.2582
Parent Delegate: Carlos Molinet
1a Transversal 10252, Dpto 41, El Bosque,
Santiago, Chile
Tel: +56. 2559 2343 +56 9 2769068
email: info@prader-willi.cl
website: www.prader-willi.cl
Czech Republic
Professional delegate:
Pavel Bircák
Krabcice 75, Krabcice 411 87 Czech Republic
mob. +420 731 788487
Parent delegate: Ing.Hana Verichová
Na stráni 4, 101 00 Prague 10
Czech Republic, tel. +420 271 742 380
Denmark
Professional delegate: Susanne Blichfeldt MD,
The Danish PWS Association,
Kildehusvej 12,
DK-4000 Roskilde, Denmark
Tel: +45 4637 3204, +45 4637 3203
Parent delegate:
Jytte Helgogaard
Heibergs Have 67
DK 4300 Holbaek
Denmark
website: www.prader-willi.dk
Estonia
Professional delegate: Vallo Tillmann, MD, PhD, Professor of Paediatrics, Director and Chairman, Tartu University Children's Hospital
Lunini 6, 51014 Tartu, ESTONIA
Phone:+372 7 319 500 (direct)
+372 7 319 501 (secretar Liidia Koik)
Fax: + 372 7 319 503
Parent delegate: Mrs Ülle Kauksi
Finland
Professional delegate: Dr. Risto Lapatto
HUCH Hospital for children and adolescents
University of Helsinki,
P.O.Box 281,
FIN-00029 HUS, Finland
tel +358-50-4286413
Parent delegate:
Jarmo Papinniemi
Hiihtäjäntie 6 B 31
00810 Helsinki, Finland
tel +358-50-3103029
website: www.pws-yhdistys.fi
France
Professional delegate: Pr. Maïthé Tauber
Unité d'Endocrinologie, maladies osseuses, génétique et gynécologie médicale, Hôpital des Enfants, 330 av de Grande Bretagne
TSA 70034, 31059 Toulouse Cedex 9
Tel 33 5 34 55 85 55 51,
Fax 33 5 34 55 85 55 58
Parent delegate: Francois Besnier
39 rue Félibien 44000 Nantes, France
Tél : +33 2 40 47 82 49
Germany
Professional delegate: Dr.Gabriele Gillessen-Kaesbach, Ratzeburger Alee 160
(Uni-Klinik)
D-23562 Lübeck, Germany,
Tel.+49 451 5002620,
Parent delegate: Monika Fuhrmann,
Weiherstr. 23, D-68259 Mannheim, Germany
Tel: +49 621 799 2193
website: www.prader-willi.de/
Greece
Professional delegate: As. Professor Dr. Christina Kanaka-Gantenbein, MD.,
Pediatriciac Endocrinology and Diabetes
1st Department of Paediatrics,
University of Athens
52 Kifissias Ave., 115 26 Athens, Greece
Tel. +30 1 777 9909,
Parent delegate: Maria Papaiordanou
Ploutonos 1 & Themistokleous St.
17455 Kalamaki - Alimos, Athens, Greece
Tel: +30-210-981-8179, fax: +30-210-413-4648
India
Professional delegate: Dr. Anil B. Jalan
MD DCH MCPS
NIRMAN A - 103 , Vardhman Chambers,Next to Babubhai Jagjeevandas Showrrom, Above Axis Bank, Sector 17, Vashi, Navi Mumbai, India - 400 705
Tel : 0091-22-6791 0236 / 37
Parent delegate: Shikha Metharamani
16\1,Loudon Street, 3D Loudon Park
Kolkata-700 017 W.Bengal.India
Tel. +91-33-22472765,
cell. phone: +91-9831008191
Israel
Professional delegate: Varda Gross-Tsur MD., POB 2210, Mevaseret Zion 90805, Israel
Tel: +972 2 5341193, Fax: +972 2 6422481,
website: www.pwsil.org.il
Italy
Professional delegate:
Giuseppe Chiumello
IRCCS San Raffaele, Università Vita-Salute
Via Olgettina 60, Milano, Italia
Tel: 02 2643 2623
Parent delegate: Valentino Colosso
Via Nicodemi 26, 31015 Conegliano (TV)
Tel. +39 0438-34491 (home), +39 0438-914351
(work), Mobile +39 349-5092188
http://digilander.libero.it/praderwilli/main.htm
Japan
Professional delegate: Dr. Tomoko Hasegawa, M.D., Genetic Support & Consultation Office (GeSCO), 　Hara-machi, Meguro-ku, Tokyo, 152-0011Japan, Tel +81-3-3712-3060,
Parent delegate: Kazue Matsumoto
Sanjo-cho 33-11, Asiya-city, Hyogo-prefecture, 659-0087Japan, Tel. + 81 797-38-3087
website: www.pwsa-japan.org
Korea
Professional delegate: Han-Wook Yoo, M.D., Ph.D., Professor & Chairman,
Department of Pediatrics, Asan Medical Center, University of Ulsan College of Medicine,
388-1 Pungnap-Dong, Songpa-Gu,
Seoul, 138-736, Korea
Fax:82-2-473-3725, Tel:82-2-3010-3374,
Parent delegate: Jihoon Hong
Suyang Apt 204, Woncheon-Dong 30-5, Youngtong-Gu, Suwon-City, Gyonggi-Do,
443-821, Korea
Tel: +82-31-213-9195
Mobile: +82-10-6437-5168
www.pwsakorea.org
The Netherlands
Professional delegate: Prof. Dr. Leopold Curfs
University Maastricht / Academic Hospital Maastricht, Department Clinical Genetics
P.O. box 1475, 6201 BL Maastricht
The Netherlands, Tel. +31 43 3877850 / +31 43 38775899,
Parent delegate: Gerard Meijwaard
Louis Pasteurpad 28, 6216 EV Maastricht
The Netherlands, tel.: 043 3432371
Prader-Willi/Angelman Vereniging
T.a.v. mw. T. Stranders, Postbus 85278
3508 AG Utrecht, Holland, Tel.+31 30236 3763,
website: www.praderwillisyndroom.nl
New Zealand
Professional delegate:
Dr Paul Hofman, MBChB, FRACP Senior Lecturer in Paediatrics
The Liggins Institute, University of Auckland
Private Bag 92019, AUCKLAND
Telephone 64 9 373 7599 ext. 86476
Fax 64 9 373 7497
Parent Delegate:
Melanie Sweet
59a Pots Road
Normandale
Wellington 5010
website: www.pwsa.org.nz
Norway
Professional delegate: Kai Fredrik Rabben
Frambu, Sandbakkveien 18,
N-1404 Siggerud, Norway
Tel.: +47 64 85 60 48, Mobile: +47 90 11 18 19
Parent delegate: Ragnhild Øverland Arnesen
Kollbulia 22, N-5124 Morvik, Norway
Tel: +47 5518 4842, mob. +47480 96 709
website: www.praderwilli.no
Poland
Professional delegate: Ewa Obersztyn MD, PhD, Department of Medical Genetics, National Institute of Mother and Child,
01-211 Warsaw, ul. Kasprzaka 17a, Poland
Tel: +48 22 32 77 490, Fax: +48 22 32 77 152
Parent delegate: Maria Libura
02-132 Warsaw, ul. Baleya 4/11 Poland
Tel +48 22 659 87 78,
Prader-Willi Association Poland
ul Jasnorzewskiej 9/10
01-863 Warsaw
Poland
President: Maria Libura
www.prader-willi.pl
Romania
Professional delegate: Szekely Aurelia, Endocrinologist - doctor in medicine, Zalau, str. Oborului, nr.10, Romania,
tel: +40 260/662672, mobile: +40 0742070123,
Parent delegate: Tibi Dan
Str. Simion Barnutiu, nr.97, bl. SB 88, apt.14
Loc. Zalau, Judet Salaj, Cod. 450129 Romania
Tel: + 40 60/616585 or +40 726 248707.
website: www.apwromania.ro
Slovakia
Professional delgate: Doctor Maria Kusekova
Lomonosovova street 38, 040 01 Kosice,Slovakia
phone: +421 903 625312, *421 55 6404120
Parent Delegate: Maria Benedekova
Alderova, 12, 040 22 Kosice, Slovakia
Tel. +421 905 165422 website: www.pwsyndrom.sk
South Africa
Professional delegate: Dr Engela M Honey,
Departement of Human Genetics,
University of Pretoria, PO Box 2034
0001 PRETORIA, SOUTH AFRICA
Tel: +27 82 5795315
Parent delegate: Rika du Plooy
267 Middelberg Street, Muckleneuk, 0002 Pretoria, South Africa, Te.: +27 12 3440241
website: www.praderwilli.org.za
Spain
Professional delegate: Dr. Fernando Mulas,
Jefe de Neuropediatria, Hospital Universitario
„LA FE", Avda. Campanar, 21
46020 Valencia, Spain
Tel: +34 96 386 2700 Ext. 50481
Fax:+34 96 3623194,
website: www.prader-willi-esp.com
Parent Delegate: Pedro Alvarez Martínez
Calle Alfonso VI, nº 7 - 3º E
26.007 Logroño
La Rioja
teléfono 00.34.649372332
Sweden
Professional delegate: Professor Martin Ritzén
Pediatric Endocrinology, Karolinska Hospital
S-171 76 Stockholm, Sweden
Phone: +46 8 5177 2465, Fax: +46 8 5177 5128 website: www.prader-willi.se
Parent delegate: Jean Phillips-Martinsson
Farthings 44 Warwick Park, Tunbridge Wells
Kent TN2 5EF, United Kingdom
Te/Fax +44 1892 549492
Website: www.prader-willi.se
Switzerland
Professional delegate: Professor Urs Eiholzer, Head PEZZ Center for Pediatric Endocrinology Zurich
Möhrlistrasse 69, CH-8006 Zürich
Tel. +41 44 364 37 00, Fax +41 44 364 37 01
Parent delegate: Doris Bächli,
Im Vogelsang, CH 9477 Trübbach,
Switzerland, Tel: +41 81 783 2601
website: www.Prader-Willi.ch
Taiwan
Professional delegate: Dr. Shuan-Pei Lin,
Division of Genetics, Dept. of Pediatrics,
Mc Kay Memorial Hospital
92 Chung-San N. Road, Sec 2,
Taipei, Taiwan, Tel:+886 2 2543 3585 / 3089
Fax:+886 2 2543 3642
Parent delegate: Leo Liu
3F., No.3, Lane 357, Songjiang Rd., Jhongshan District, Taipei City 104, Taiwan (R.O.C.)
Tele: +886-2-25175002, Fax +886-2-25175279
website: www.pwsa.org.tw
United Kingdom (England, Scotland, Wales)
Professional delegate: Prof. AJ Holland,
2nd Floor, Douglas House, 18b Trumpington Road, Cambridge CB2 2AH, UK
Tel: +44 1223 746112, Fax: +44 1223 746122
Parent delegate: Jackie Waters, 125a London Road, Derby DE1 2QQ England
Tel: +44 1332 365676, Fax: +44 1332 365401
website: www.pwsa.co.uk
United States of America
Professional delegate: Suzanne B. Cassidy, M.D.
66 Toyon Lane, Sausalito, CA 94965 USA
Phone: +1-415-332-0588
Parent delegate: Susan Henoch
516 Kingston Road, Princeton, NJ 08540
Tel. +1 609-924-0903,
website: www.pwsausa.org
France
Professional delegate: Pr. Maïthé Tauber
Unité d'Endocrinologie, maladies osseuses, génétique et gynécologie médicale
Hôpital des Enfants
330 av de Grande Bretagne
TSA 70034, 31059 Toulouse Cedex 9
Tel 33 5 34 55 85 55 51,
Fax 33 5 34 55 85 55 58
Parent delegate: Christel Nourissier
2 rue Montfleury 78000 Versailles, France
Tel: + 33 1 39 54 93 37
website: www.prader-willi.fr