IPWSO, International, Prader-Willi Syndrome, organisation, delegates, countries, membership
About-IPWSO » Member Countries
(countries who do not yet have a PWS Association, or who are not subscribed voting members of IPWSO, but who are affiliated in name)
A B C D E F G H I J K M N O P Q R S T U V W X Y Z
Professional delegate: Lindita Grimci MD. PHD.
Pediatric Endocrinologist.
University Hospital Center "Mother Teresa"
Pediatric Deparment. Rd. Dibrës
Nr. 370, Tiranë, Albania.
Home: Bul. "Zhan D'Ark", Kulla 1, tel. 00355 (4) 265 534,
Mobile 00355 (0) 68 2066 584,
Professional delegate: Dr. Karima Hamdani
Chemin Sidi Yahia cité des 20 logts Bt
1 N°1 Bir Mourad Rais Algiers Algeria
Tel. :+ 213 21 56 26 59
Professional delegate: Dr. Ramiro Alvarado Neurosurgeon,
P.O. Box 1701, La Paz Bolivia
Tel. +591 22 713511 (home), +591 22 423708 (work), Fax +591 22 423708
Parent delegate: Luz Elizabeth Tejada Velez
Casilla N.6861, La Paz - Bolivia
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Professional Delegate: Dr Haya Alkhayyat, MD, DCH, MSc, CABP, FRCPCH
Consultant Paediatrician and Endocrinologist,
Bahrain Defence Force Hospital,
Kingdom of Bahrain
Tel: +973 39675588
Email: hayaalkhayyat(at)hotmail.com
Professional delegate: Alma Toromanovic, MD
Division of Endocrinology,
Department of Pediatrics,
University Clinical Center Tuzla
Trnovac bb Tuzla 75000
Bosnia and Herzegovina
Tel. +387 35 255 132, Fax: + 387 35 303 700
Brazil
Professional delegate:
Dr. Fernando Diniz:
City: São José do Rio Preto
Estate: São Paulo
Street: Av. Murchid Homsi, 107
Fone: 55 (17) 21396262
Parent Delegate:
Carol Rodriguez
email: carolrodriguez76(at)gmail.com
Professional delegate: Dr Radka Tincheva,MD
Head of Department of Clinical Genetics
University Pediatric Hospital
Blvd. Ivan Geshov 11, 1606 Sofia, Bulgaria
Parent delegate: Stanimir Tsonev
7, Raina Knayginya Str. fl. 4 , ap. 11
Sofia - 1309, Bulgaria
home + 35924808244 , mob. +359888642472
Professional delegate: Jinghua Chai, M.D., M.Sc.,
348 Inwood Road, Ardmore PA 19003, USA., Tel. +1 610-658-2885,
DR. Hongmei Song, Dept.of Pediatrics
Peking Union Medical College (PUMC) Hospital
No 1 Shuaifuyuan,Dongcheng
Beijing 100730, China
Tel(and Fax):86-10-65296271
Professional delegate: Dr Alejandro Velàsquez,
Endocrinologo Pediatra,
Calle 2 sur # 46-55 Fase 1. Clinica Las Vegas,
Consultorio 223- Medellìn- Colombia
Tel 2683763 Celular 3108398091.
Parent delegate: Jorge Restrepo
Apartado Aèreo 11667, Carrera 32B#10-110
Apt 617 Medellìn- Colombia
Telèfono casa: 574-2687886
Telefono celular 57-315-5366897
Parent Delegates: Kensy Jimenez: (Phone) 88-00-63-68
email: kensyjimenezspw(at)hotmail.com
Professional Delegate: Daniela Zamora: (Phone) 87-44-91-90
Professional delegate: Prim. Dr.Jasenka Ille,
KBC Zagreb, Rebro, Kispaticeva 12
10000 Zagreb, Croatia, Tel. +385 1 2388331
Parent delegate: Ivka Cop
Bukovacka 158, 10000 Zagreb, Croatia
Tel. +385 91 5190661,
Professinal Delegate: Dr. Loisel Bello
Ulloa Especialista en neumología,
Hospital Provincial docente Antonio Luaces Iraola
Calle Cuba 311 % 1 y 2 Vista Alegre
Municipio Ciego de Avila,
Provincia Ciego de Ávila, Cuba
Teléfono:0133 20 1082,
Email: loiselb@ali.cav.sld.cu
Parent delegate: Marlen Román
García Licenciada en Educación Especial,
Pedagoga clínica,
Centro de Orientación y Diagnóstico Ciego de Ávila,
Calle Cuba 311 % 1 y 2 Vista Alegre,
Municipio Ciego de Ávila,
Provincia Ciego de Ávila, Cuba
Teléfono:0133 20 1082

Professional delegate:MUDr. Sylvie Kubcová
Křižíkova 6
412 01 Litoměřice
e-mail: skubcova@centrum.cz
tel.:+420605786679
Parent delegate: Ing.Hana Verichová
Na stráni 4, 101 00 Prague 10
Czech Republic, tel. +420 271 742 380
e-mail: h.verichova@seznam.cz
Parent delegate: Jorge Oswaldo Zúñiga Gallegos,
Urbanización Carlos Montufar,
Calle Isla Puná No. 8, San Rafael,
Casilla Postal No. 17-23-159, Quito Ecuador
Tel. +593 2 2860-985, +593 2 2865-047
Other contact: Armando Castellanos
Reina Victoria 17-37 y La Niña
Quito-Ecuador, Telefono: (593 2) 2683 647
Professional delegate: Osama K Zaki,MD
Cytogenetics Unit. Dept Of Pediatrics,
Ain Shams University, 8, Kamal Raslan St. Heliopolis,
Cairo 11771 Egypt,
Tel: +20 2 2717445, Fax: +20 2 2731933
Parent delegate: Omnia Mourad
One Mohamed El Nadi Street
Makram Ebeid, 6th Zone, Nasr City, Egypt
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Professional delegate: Prof. David Metreveli
Vice President of Georgian Society of Endocrinology,
Assoc. Professor of Tbilisi State Medical University,
Director of David Metreveli Medical Centre Ltd,
9 Tsinandali St. Tbilisi, Georgia, 0144
Tel: + 995 32 2190 007, (work)
+ 995 577 411 366 (Mob)
Fax: + 995 32 2773 348
email: dmetr@gol.ge
Professional 2nd delegate:
Ekaterine Kvaratskhelia MD, PhD
Endocrinolgist, Pediatric Endocrinologist
David Metreveli Medical Center, "DMMC"
Georgian Foundation for Genetic and Rare Diseases,
"GeRaD" Tbilisi, Georgia
9 Tsinadali St, Tbilisi, 0144, Georgia
Tel: +995599435363 (Mob.)
Fax: +99532 277 60 67
E-mail: k_ekaterine@mail.ru

Professional delegate:
Licda. Q.B. Mayra Urízar, Laboratorio Bioanalisis 18 Av. 4-50
zona 3. Quetzaltenango, Guatemala. C.A.
tel +502-77674597 celular +502 54070806.
e-mail: mayraurizardebarrios@gmail.com
Parent delegate: Luis Barrios Izaguirre
6a. calle "C" 4A-25 zona 9. Los Cerezos I
Quetzaltenango. Guatemala. C.A.
tel +502-77677202 cel +502-55060539
e-mail: luisitobarrios@gmail.com
Professional delegate: Dr. Jose Armando Berlioz Pastor,
Colonia Altos de Miramontes, Diagonal Aguan # 2751
Tegucigalpa, M.D.C. Honduras, C.A.
Phones: (504) 232-4429 (Home);
(504) 221-1939 (Office); (504) 992-4569 (Mobile).

Professional and parent delegate:
Dr Chim Tsui Shan,
Shirley
Shop C151, 2/F,
Kwai Chung Plaza,
Kwai Fong, NT,
Hong Kong
Phone: 852-96018098
E-mail: hammerrocksc@gmail.com
Dr Dóra Török MD, PhD
Semmelweis Universtiy, 2nd Dept of Pediatrics
Tuzolto u. 7-9 Budapest, 1094, Hungary
Phone: +36 20 825 9342
email: torokdora(at)gmail.com
Parent delegate: Zsuzsanna Szalay
Hungary, 2053, Herceghalom,
Arany János u. 25.
Phone: +36 70 5774759, www.PWSHungary.hu
Professional delegate:
Ingólfur Einarsson, barnalæknir / Paediatrician, MRCPCH
Sérfræðingur í fötlunum barna / PGDip (Paediatric Neurodisability)
Greiningar- og ráðgjafarstöð ríkisins / The State Diagnostic and Counselling Centre
Digranesvegi 5
IS-200 Kopavogi
Ísland / Iceland
Sími 510-8400 / Tel. +354 510-8400
Fax 510-8401 / Fax. +354 510-8401
www.greining.is / http://www.greining.is/english/
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Parent delegate: Isabel Gonzalez
Camiguin St. Vincent Heights
Lanang, Davao City
8000 Philippines
Contact Numbers : 0917 271 5994 or 0928 268 2556
Email Address : izziegonzalez(at)hotmail.com
Professional delegate: Alberto Santiago Cornier, M.D. Ph.D. ,
Ponce School of Medicine
Genetic Division, P O Box 7004
Ponce PR 00732, Puerto Rico
Tel. +1 (787) 840-2575 ext. 2218/2213/2156
Fax: +1 (787) 840-5698
Parent delegate:
Elsa Alago
Urb Paseos Reales
41 Calle Alarcon
San Antonio PR 00690
Tel: (787) 312-7950
email: ealago13(at)gmail.com
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Professional delegate: Drª Clara Loff
Hospital D. Estefânia in Lisbon,
Tel. +351 939 290 679
Parent delegates: Paula Cristina de Sousa Raimundo Barreiro Rebelo
Rua Cidade de Cabinda, nº 22 - 6º Esq.
1800 - 080 LISBOA, PORTUGAL
Tel. +351 218 536 698, +351 967 617 824
+351 937 617 824,
Maissaa SerhanMD,
Al Ahli Hospital,
QGDMC , Doha
Tel: clinic ; 0097444082416
cell phone; 0097433002044
emails: maysaserhan@hotmail.com
mserhan2000@gmail.com
Adress : Al waeb Str.
Les Roses 1 , Villa 82
Doha - Qatar
P.O.Box : 25959
Professional delegate:
Professional delegate: Dr. Anna Khmyrova
St - Petersburg State Pediatric Medical Academy
Alexsander Matrosov Street, 22,
194100, St-Petersburg, Russia
tel fax Office 007 812 295 10 67
e-mail: annahm76(at)mail.ru
Professional delegate: Dr. Mazin S. Fakeeh MD, FRCP.
Dr. Soliman Fakeeh Hospital.
Palastine st. Jeddah, 21461. Pobox 2537.
Saudi Arabia, Tel. +9662-6655000
Professional delegate: Denise Li-Meng Goh,
The Children's Medical Institute, National University Hospital,
Assistant Professor, Dept of Pediatrics,
National University of Singapore
5 Lower Kent Ridge Road, S 119074, Singapore
Tel: (65)-6772-4420, Fax:(65)-6779-7486
Parent delegate: Eric & Lina Khoo
Blk 721 Pasir Ris St 72 #07-115 S510721
Singapore, tel +65 98180582 (hp).
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Professional delegate: Dr. Primoz Kotinik
Parent Delegate: Tina Volk,
President of Slovenia PWS Association
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Professional delegate: Duangrurdee Wattanasirichaigoon, MD
Faculty of Medicine Ramathibodi Hospital, Department of Pediatrics,
270 Rama 6 Rd., Bangkok 10400 Thailand
Tel +66 2201 2782, fax +66 2201 1850
Parent delegate: Jarucha CHAIYASORN
39/279 Moo.11 Klongkhum Bungkhum Bangkok.
10230 Thailand Tel No. 66-2509-4650
Parent delegate: Rungson SUWANVICHIT
105/199 Wangthong House
NavamintaraRd.,Klongkhum Bungkhum,
Bangkok 10240, Thailand
Tel No.66-2374-7455
Professional delegate: Prof.Dr. Koray Boduroglu
Hacettepe University Faculty of Medicine
Department of Pediatrics, Division of Genetics
06100 Sihhiye, Ankara, Turkiye
Fax: 0090 312 3115522, Tel: 0090 312 3051173
Professional delegate: Dr. Edison Arwanire Mworozi MBChB, M MED
Senior Consultant Paediatrician/Honorary Lecturer Clinical Head
Department of Paediatrics abd Child Health
Mulago Hospital/ Makerere University Medical School,
P.O. BOX 7072,
KAMPALA - UGANDA
Tel: 256-41- 542766/ 531875 (Office)
Fax: 256-41-534037, Mobile: 256-772-619355
Uzbekistan
Professional delegate: Shakhrizada T. Sultanova,
Academic Abdullaev Street 56
Tashkent, Repulic of Uzbekistan
Te. +998 71 269 1668,
Mobile +998 90 315 7338
Professional delegate: Prof. Nguyen Thi Hoan
Head of Endocrinology-Metabolic-Genetic Department,
18/879 La Thanh - Dong Da
Hanoi, Vietnam
Tel. +84 4 7752910, Fax +84 4 7754448
Professional delegate: Ahmed Al-Shehari MD
Pediatric consultant, Head of pediatric departement in Thamar University,
Coordinator for Control Genetic Disease in Yemen,
B.O. BOX ;- 12715 Sanaa -Yemen
el.: 00967711655660
Parent delegate: Yasser Abdurazak Derhim
Yemen-Sana'a-Hada'a Street
Mobile No:+967-71410700
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Professional delegate:
Dr Aria Setoodeh,
Children's Medical Center,
Dr Gharib Ave
Tehran
IRAN
Cellphone: +98 912 172 3561
Professional delegate: Dr. Musa Suliman
King Hussein Medical Center / Pediatric Department / Amman / Jordan
Post Office 1574, Jordan - Zarqa 13110
Mobile phone: +777 326 366
Parent delegate: Askar Sadykov Turtubekovich
23 Serikbaev st.146
070010 - Ust'-Kamenogorsk, Kazakhstan
Tel. 8-10-7232-540647, Mobile +7-777-5100902 E

Professional delegate:Dr Paul Laigong, MBCHB, MMED
Paediatric Endocrinologist
Gertrude's Children's Hospital
P O Box 460-00202
Nairobi, Kenya
Tel: +254203763372 or +254207206000
Professional delegate: Dr. Iveta Dzivite
Head of Children's Endocrinology
Centre of Latvia, 45, Vienibas gatve,
Riga Latvia LV - 1004
tel: + 3717064406, tel/fax: +371 7064436
Professional delegate: Dr Eliane Khallouf
Pediatric department.
Hotel Dieu de France Hospital
Beirut. Lebanon. Tel. 009613808805.
Parent delegate: Rita Sfeir
Sanofi-Aventis, Georges Picot street
Starco Building Bloc B first floor
Beirut P.o. box : 110 697. Lebanon
Tel +961 1 374 555 ext 378
Mobile +961 3 496878,
Professional delegate: Nadia Omar Alghazir
Paediatric endocrinologist
P.O box : 7932 Libya Furnaj - Tripoli
Telephone number : +218913221257
Lithuania
Professional delegate: Dr. Natalja Tkacenko
Mobile +370-684-01070

Professional delegate: Dr. Elena Sukarova Angelovska,
Department of endocrinology and Genetics, Pediatric Clinic,
Vodnjanska 17, Skopje, Macedonia
Parent delegate: Kostoska Valentina
Sopiste No 54 A, 1000 Skopje, Macedonia
Professional delegate: Dr. Yew Sing Choy
Pediatric Institute Kuala Lumpur Hospital
Jalan Pahang , 50586 Kuala Lumpur, Malaysia
Tel +60 3 261 55555 ext 6889, Fax: +603 2694 8187,
Parent delegate: Norliza Mohd Din & Azhar Talib,
Nr. 25, Jalan Warisan Puteri A3
Taman Warisan Piteri,
71770 Seremban, N.Sembilan,
Malaysia Tel: 017-3333940/012-3395232,
Professional delegate: Dr. Victoria Sacara
Apt. 144, 21 Dacha str., Kishinev, Moldova MD 2038,
Tel: +373 719670,
Parent delegate: Arpenti Diana
Str. Nicolae Milescu Spataru 3 ap. 137
Chisinau, 2044, Republica Moldova
Other contact: Baranova Tatiana
Apt.12, 23 Renashterey str.
Kishinev, Moldova 2005, Tel. + 226386
Professional delegate: Prof. Gaouzi Ahmed
Departments of Paediatrics,
Unit of paediatric endocrinology,
Children's university Hospital Rabat
Office: Avenue Ibn Rochd
B.P. 6542 Rabat -Institut
Home Address: app n°9 Imm. Chifaa ,
Bd Al arar Hay Riad Rabat Morocco
Tel. 037 67 13 25 (work),
Tel. (212) 037 71 26 87 (home),
Parent delegate: Mme Fatima Mandili
6 bis Rd doukkala rue Soulaimane Azzmi Appt
4 Qu Hopitaux 20000 Casa, Maroc.
Parent delegate: Alicia Rodriguez
13756 SW 48 ST., Miami, Florida 33175:
USA, Mobile +1 305-318-6087
Parent delegate: Charles Ch. Mayberry,
Erdkampsweg 6, 22335 Hamburg , Germany
Tel +49 40-5204217, Fax +49 40-5203317
Parent Delegate: Mansoor Hamed
Professional delegate: Dr. Jamal Raza
Associate Professor, National Institute of Child Health,
Rafiquee Shaheed Road, Karachi 75510
Karachi, Pakistan
Tel: 9201261-4 ext 223, Mobile: 0333-2184376
Parent delegate: Ghazala Nomani
26 Cedar St., Bergenfield, NJ 07621 USA
Tel +1 201 244 9026,
Professional delegate: Dr. Liliana Angelica Neil Burgos,
Pediatra Endocrinóloga,
Hospital de Especialidades Pediátricas,
Caja del Seguro Social. Vía España, Panamá
Tel. +507 260-1290, Mobile +507 6618 9397.
Parent delegate: Kathia Díaz Arias
San Miguelito Samaria, Sector 4b, casa 161
Panama, Tel: +507 273 9591
Professional delegate: Dr. Alberto Teruya Gibu, Av.
Iquitos 293 La Victoria,
Lima-Peru, Tel. +51-1-4248007
Parent delegate: Rosalva Espino Moscoso
José Pardo 159, Urb. Astete, San Miguel
LIMA,PERU, Tel. +51 1 4206367
To contact any of our delegates, please enquire through our "contact us" page
Professional delegate:
Maria Del Valle Torrado, MD
Billinghurst 2349 2do. E (C1425DTU)
Buenos Aires
ARGENTINA
Tel: +54 11 483037
email: mtorrado (at)fibertel.com.ar
Parent delegate: Guillermo Jose Smith
Vuelta de Obligado 2647 - 5 A (C1428ADQ)
Buenos Aires,
ARGENTINA
Tel: +54 11 15-5937-0212/4788-2653
email: guillermo.smith(at)grupomost.com
Professional delegate: Albert Matevosyan M.D., Ph.D.
Professor, Head of the Department of Medical Genetics,
Yerevan State Medical University after M.Heratsi,
Head of the Republic Center of Medical Genetics,
President of the "Neurohereditary Diseases" Charity Association
Address: 9a, Parpetsi st. apt. 6. "NHD"ChA" NGO,
Yerevan, Armenia, 375002
Tel.: +37410 532480, +37491 212890 (mobil)
Fax.: +37410 535424
email: matev(at)netsys.am or matev2007(at)yahoo.com
Professional delegate:
Dr. Ellie Smith,
Clinical Assoc. Professor
Senior Staff Specialist
Executive Officer, Dpt Cytogenetics
The CHildren's Hopsital at Westmead Clinical School
Cnr Hawkesbury Road & Hainsworth St, Westmead.
Locked Bag 4001, Westmead NSW 2145
AUSTRALIA
Tel.+61 29527 9795 (home) ,+ 61 2 9845 3237 (work),
email: ellies(at)nch.edu.au
Parent delegate:
Michael Dyer
Email:dyerlog@yahoo.com.au
Phone: +61 2 9908 3502
website: www.pws.org.au
Professional delegate:
Dr. Barbara Utermann
Dr.-Karl-Ottstr.9
A-6071-Aldrans
AUSTRIA
Tel:0043 10 392725
email: b.utermann(at)aon.at
Parent delegate:
Dr Monika Lederer
Holzgasse 15
A-6020 Innsbruck
AUSTRIA
Tel: +43 664 3401602
email: moni.lederer(at)hotmail.com
website: http://www.prader-willi-syndrom.at/
Professional delegate:
Annick Vogels, M.D., Ph. D., C.M.E. KU Leuven,
Herestraat 49
B-3000 Belgium, Tel: 32 16 345903,
Parent delegate:
Karlien Van Orshoven
Buisegemiel 143, 2650 Edegem
Tel: +32 3/4483599
website: http://www.fpwr.ca
Professional delegate: Dr. Glenn Berall
BSc, MD, FRCP(C)
4001 Leslie Street, Toronto, ON M2K 1E1
Canada, Tel: +1 416-756-6222
Fax: +1 416-756-6853,
E-mail: gberall@nygh.on.ca
Parent delegate: Tanya Johnson
2354 Robin Drive, Mississauga, ON L5K1S9
email: tanya.johnson@fpwr.ca
phone: +905.339.992
Professional delegate: Dra Fanny Cortes
Monsalve, Lo Fontecilla 441
Las Condes, Chile
Tel: +56.2.678.1478
Fax: +56.2.215.2582
Parent Delegate:
Amalia Balart Salamero
Medinacelli 1387, Las Condes, Santiago, Chile
Telephone: 56-2-2207830
Mobil: 9-2802345
Office: 56-2-2424404 ext 109 (The Newland School- Head of Junior)
email: info@prader-willi.cl
website: http://www.prader-willi.cl/
Professional delegate:
Pavel Bircák
Krabcice 75, Krabcice 411 87 Czech Republic
mob. +420 731 788487
parvel.bircak@seznam.cz
Parent delegate: Ing.Hana Verichová
Na stráni 4, 101 00 Prague 10
Czech Republic, tel. +420 271 742 380
h.verichova@seznam.cz
Professional delegate: Susanne Blichfeldt MD,
The Danish PWS Association,
Kildehusvej 12,
DK-4000 Roskilde, Denmark
Tel: +45 4637 3204, +45 4637 3203
Parent delegate:
Jytte Helgogaard
Heibergs Have 67
DK 4300 Holbaek
Denmark
website: http://www.prader-willi.dk/
Caregiver delegate: Djanik Gade Andersen
Noerre Alle 3, DK 8930 Randers NOE
Tel: +45 51501288
email: ltgade@webspeed.dk
Professional delegate: Vallo Tillmann, MD, PhD,
Professor of Paediatrics, Director and Chairman,
Tartu University Children's Hospital
Lunini 6, 51014 Tartu, ESTONIA
Phone:+372 7 319 500 (direct)
+372 7 319 501 (secretar Liidia Koik)
Fax: + 372 7 319 503
Parent delegate: Renata Soukand
Prader-Willi Sundroomi Uhing MTU
Tontsu kinnistu, Umbusi kula
Poltsamaa vald
Jogeva maakond 48026
ESTONIA
Tel: +37 250 22394, +37 27121234
email: renata(at)folklore.ee
Professional delegate: Dr. Risto Lapatto
HUCH Hospital for children and adolescents
University of Helsinki,
P.O.Box 281,
FIN-00029 HUS, Finland
tel +358-50-4286413
Parent delegate:
Jarmo Papinniemi
Hiihtäjäntie 6 B 31
00810 Helsinki, Finland
tel +358-50-310302
email jarmo.papinniemi(at)kolumbus.fi
website: http://www.pws-yhdistys.fi/
Professional delegate: Pr. Maïthé Tauber
Unité d'Endocrinologie, maladies osseuses,
Génétique et gynécologie médicale,
Hôpital des Enfants, 330 av de Grande Bretagne
TSA 70034, 31059 Toulouse Cedex 9
Tel 33 5 34 55 85 55 51,
Fax 33 5 34 55 85 55 58
www.prader-willi.fr
Parent delegate:
Francois Besnier
39 rue Felibien 44000 Nantes, France
Tel: +33 2 40478249
email: f.besnier@wanadoo.fr
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Professional delegate:
Dr Constanze Lammer
Kinderklinik St Bernward Krankenhaus
Treibestr. 9
D-31134 Hildesheim, Germany
phone: +49 512.1905704
email: constanze.laemmer(at)t-online.de
Parent delegate: Monika Fuhrmann,
Weiherstr. 23, D-68259 Mannheim, Germany
Tel: +49 621 799 2193
Professional delegate: As. Professor Dr. Christina Kanaka-Gantenbein, MD.,
Pediatriciac Endocrinology and Diabetes
1st Department of Paediatrics,
University of Athens
52 Kifissias Ave., 115 26 Athens, Greece
Tel. +30 1 777 9909,
Parent delegate: Maria Papaiordanou
Ploutonos 1 & Themistokleous St.
17455 Kalamaki - Alimos, Athens, Greece
Tel: +30-210-981-8179, fax: +30-210-413-4648
Professional delegate: Dr. Anil B. Jalan
MD DCH MCPS
NIRMAN A - 103 , Vardhman Chambers,
Next to Babubhai Jagjeevandas Showrrom,
Above Axis Bank, Sector 17, Vashi, Navi Mumbai, India - 400 705
Tel : 0091-22-6791 0236 / 37
Parent delegate: Shikha Metharamani
16\1,Loudon Street, 3D Loudon Park
Kolkata-700 017 W.Bengal.India
Tel. +91-33-22472765,
cell. phone: +91-9831008191
Professional Delegate: Prof Hilary Hoey,
TCD Dept. of Paediatrics
National Children‘s Hospital, Tallaght
Dublin 24, Ireland, Tel. +353 1 608 3763
E-mail: hhoeydge@indigo.ie
Liaison Officer: Ann Grassick
36 Gracepark Heights
Drumcondra
Dublin 9
Ireland.
Home Number 00353 1 8370863
Mobile 00353 87 9354914
website: www.pwsai.ie
Professional delegate: Varda Gross-Tsur MD.,
POB 2210,
Mevaseret Zion 90805,
Israel
Tel: +972 2 5341193, Fax: +972 2 6422481,
Parent delegate: Urith Boger
31 Aya St, Ramat Hasharon
Israel
email: koshi1(at)netvision.net.il
Professional delegate: Giuseppe Chiumello
IRCCS San Raffaele, Università Vita-Salute
Via Olgettina 60, Milano, Italia
Tel: 02 2643 2623
Parent delegate: Valentino Colosso
Via Nicodemi 26, 31015 Conegliano (TV)
Tel. +39 0438-34491 (home), +39 0438-914351
(work), Mobile +39 349-5092188
Professional delegate: Yoshiro Kato
3-28-14 Nagaoka, Nagaoka-Kyoshi, Kyoto-fu,
Japan
Telephone: +81 759538595
email: gfa03452(at)nifty.com
Parent delegate: Kazue Matsumoto
Sanjo-cho 33-11, Asiya-city, Hyogo-prefecture,
659-0087Japan, Tel. + 81 797-38-3087
website: www.pwsa-japan.org
Professional delegate: Han-Wook Yoo, M.D., Ph.D.,
Professor & Chairman,
Department of Pediatrics,
Asan Medical Center,
University of Ulsan College of Medicine,
388-1 Pungnap-Dong, Songpa-Gu,
Seoul, 138-736, Korea
Fax:82-2-473-3725, Tel:82-2-3010-3374,
Parent delegate: Jihoon Hong
Suyang Apt 204, Woncheon-Dong 30-5,
Youngtong-Gu, Suwon-City,
Gyonggi-Do,
443-821, Korea
Tel: +82-31-213-9195
Mobile: +82-10-6437-5168
Professional delegate: Prof. Dr. Leopold Curfs
University Maastricht / Academic Hospital Maastricht,
Department Clinical Genetics
P.O. box 1475, 6201 BL Maastricht
The Netherlands, Tel. +31 43 3877850 / +31 43 38775899,
Parent delegate: Gerard Meijwaard
Louis Pasteurpad 28, 6216 EV Maastricht
The Netherlands, tel.: 043 3432371
Prader-Willi/Angelman Vereniging
T.a.v. mw. T. Stranders, Postbus 85278
3508 AG Utrecht, Holland, Tel.+31 30236 3763,
Professional Delegate: Dr Paul Hofman, MBChB, FRACP
Senior Lecturer in Paediatrics
The Liggins Institute, University of Auckland
Private Bag 92019, AUCKLAND
Telephone 64 9 373 7599 ext. 86476
Fax 64 9 373 7497
Parent Delegate: Karen O'Reilly
ceo(@)pws.org.nz
website: www.pwsa.org.nz
Professional delegate: Kai Fredrik Rabben
Frambu, Sandbakkveien 18,
N-1404 Siggerud, Norway
Tel.: +47 64 85 60 48, Mobile: +47 90 11 18 19
Parent delegate: Ragnhild Øverland Arnesen
Kollbulia 22, N-5124 Morvik, Norway
Tel: +47 5518 4842, mob. +47480 96 709
website: www.praderwilli.no
Professional delegate: Ewa Obersztyn MD, PhD,
Department of Medical Genetics,
National Institute of Mother and Child,
01-211 Warsaw, ul. Kasprzaka 17a, Poland
Tel: +48 22 32 77 490, Fax: +48 22 32 77 152
Parent delegate: Maria Libura
02-132 Warsaw, ul. Baleya 4/11 Poland
Tel +48 22 659 87 78,
Prader-Willi Association Poland
ul Jasnorzewskiej 9/10
01-863 Warsaw
Poland
President: Maria Libura
www.prader-willi.pl
Professional delegate: Szekely Aurelia,
Endocrinologist - doctor in medicine,
Zalau, str. Oborului, nr.10,
Romania,
tel: +40 260/662672, mobile: +40 0742070123,
Parent delegate: Tibi Dan
Str. Simion Barnutiu, nr.97, bl. SB 88, apt.14
Loc. Zalau, Judet Salaj, Cod. 450129 Romania
Tel: + 40 60/616585 or +40 726 248707.
website: www.apwromania.ro
Professional delgate: Doctor Maria Kusekova
Lomonosovova street 38,
040 01 Kosice,
Slovakia
phone: +421 903 625312, *421 55 6404120
Parent Delegate: Maria Benedekova
Alderova, 12,
040 22 Kosice, Slovakia
Tel. +421 905 165422 website: www.pwsyndrom.sk
Professional delegate: Dr Engela M Honey,
Departement of Human Genetics,
University of Pretoria, PO Box 2034
0001 PRETORIA, SOUTH AFRICA
Tel: +27 82 5795315
Parent delegate: Rika du Plooy
267 Middelberg Street, Muckleneuk,
0002 Pretoria,
South Africa,
Tel: +27 12 3440241
website: www.praderwilli.org.za
Professional delegate: Dr. Fernando Mulas,
Jefe de Neuropediatria,
Hospital Universitario
„LA FE", Avda. Campanar, 21
46020 Valencia, Spain
Tel: +34 96 386 2700 Ext. 50481
Fax:+34 96 3623194,
website: www.prader-willi-esp.com
Parent Delegate: Pedro Alvarez Martínez
Calle Alfonso VI, nº 7 - 3º E
26.007 Logroño
La Rioja
teléfono 00.34.649372332
Professional delegate: Professor Martin Ritzén
Pediatric Endocrinology, Karolinska Hospital
S-171 76 Stockholm, Sweden
Phone: +46 8 5177 2465, Fax: +46 8 5177 5128
Parent delegate: Jean Phillips-Martinsson
Farthings 44 Warwick Park, Tunbridge Wells
Kent TN2 5EF, United Kingdom
Te/Fax +44 1892 549492
Website: www.prader-willi.se
Professional delegate: Professor Urs Eiholzer,
Head PEZZ Center for Pediatric Endocrinology Zurich
Möhrlistrasse 69,
CH-8006
Zürich
Tel. +41 44 364 37 00, Fax +41 44 364 37 01
Parent delegate: Doris Bächli,
Im Vogelsang, CH 9477 Trübbach,
Switzerland, Tel: +41 81 783 2601
website: www.Prader-Willi.ch
Professional delegate: Dr. Shuan-Pei Lin,
Division of Genetics, Dept. of Pediatrics,
Mc Kay Memorial Hospital
92 Chung-San N. Road, Sec 2,
Taipei, Taiwan, Tel:+886 2 2543 3585 / 3089
Fax:+886 2 2543 3642
Parent delegate: Leo Liu
3F., No.3, Lane 357, Songjiang Rd.,
Jhongshan District,
Taipei City 104, Taiwan (R.O.C.)
Tele: +886-2-25175002, Fax +886-2-25175279
website: www.pwsa.org.tw
Professional delegate: Prof. AJ Holland,
2nd Floor, Douglas House,
18b Trumpington Road,
Cambridge CB2 2AH,
UK
Tel: +44 1223 746112, Fax: +44 1223 746122
Parent delegate: Jackie Waters,
125a London Road,
Derby DE1 2QQ
England
Tel: +44 1332 365676, Fax: +44 1332 365401
website: www.pwsa.co.uk
Professional delegate: Suzanne B. Cassidy, M.D.
66 Toyon Lane, Sausalito, CA 94965 USA
Phone: +1-415-332-0588
Parent delegate: Joan Gardner
4710 Bouleau Road
White Bear Lake, MN 55110-3355
Tel: +001 651 4296441
website: www.pwsausa.org