Suzanne, Cassidy, Janalee Heinemann, Linda Thornton, Tiina Silvast, Dorica Dan, Anil Choubey, Georgina Loughnan, IPWSO, Board

Officers & Board Members

IPWSO Scientific Advisory Board

Chair of Scientific Advisory BoardChair:  Prof. Dr. Leopold Curfs

Dept. of Clinical Genetics
University Maastricht/Academic Hospital
Maastricht, The Netherlands

 

Tony Holland, MDTony Holland, MD

PPP Chair of Learning Difficulties,
Director of the Centre for Learning Difficulties
University of Cambridge, Cambridge, UK

 

Dan Driscoll, Ph.D MDDan Driscoll, Ph.D MD

University of Florida
Health Sciences Center
Div. Genetics / Dept. of Pediatrics
Gainesville, FL  U.S.A.

 

Moris A. Angulo, MDMoris A. Angulo,

Director of Medical Genetics
Assistant Director of Pediatric Endocrinolgy
Winthrop University Hospital
Mineola, NY  U.S.A.

 

Susanne Blichfeldt, MDSusanne Blichfeldt, MD

consultant (Neuropediatrics)
Herlev University Hospital
2730 Herlev
Denmark

 

Janice L. Forster, MD

Child & Adolescent Psychiatrist
Pittsburgh Partnership
Pittsburgh, PA  U.S.A.

 

Professor Martin RitzénProfessor Martin Ritzén

Pediatric Endocrinology
Karolinska Hospital
Stockholm, Sweden

 

Ann O. Scheimann, MD, MBAAnn O. Scheimann, MD, MBA

Assistant Professor of Pediatrics
Johns Hopkins School of Medicine

 

Dr. Shuan-Pei LinDr. Shuan-Pei Lin

Division of Genetics
Dept. of Pediatrics
McKay Memorial Hospital
Taipei, Taiwan

 

Prof. Urs Eiholzer, MDProf. Urs Eiholzer, MD

Associated Professor and Head
PEZZ Center for Pediatric Endocrinology
Möhrlistrasse 69
CH-8006 Zürich
Switzerland

Chief Executive

Giorgio Fornasier, Italy

office contact

 

 

IPWSO Board  

President
Suzanne Cassidy, MD

Clinical Professor of Pediatrics,
University of California, San Francisco, USA

 

 

 

 Vice President
Janalee Heinemann
Medical Director, PWSA (USA)

 

 

Secretary
Linda Thornton

IPWSO Secretary & PR Consultant
(New Zealand)

 

 

Dorica Dan, Romania

 Dorica Dan (Romania) Treasurer

President Romanian Prader Willi Association 
Romanian National Alliance for Rare Diseases 
BoD EURORDIS, Romania

 

 
Tiina Silvast, Finland

Tiina Silvast (Finland)

Board member and publications designer, Finland

 

 

 

Jackie Waters (UK)

Board member and Assistant Secretary;  
Deputy Chief Executive/Operations Director PWSA (UK)
United Kingdom

 

Georgina Loughnan

Georgina Loughnan (Australia)

Co-opted Board Member, June 2011
Physiotherapist - Metabolism & Obesity Services
and the Prader-Willi Syndrome Clinic,
Royal Prince Alfred Hospital, Camperdown, NSW 2050, Australia

 

 

Anil Choubey

Anil K. Choubey (India)

Co-opted Board member, June 2011
Founder member and Trustee of the Indian PWS Association.

 

 

 

Jose Luis Garcia

Jose Luis Garcia (Chile)

Co-opted Board Member, June 2011
International Businessman and
Grandfather to grandson with PWS.

 

 

 

Hubert Soyer

Hubert Soyer PhD (Germany)

Co-opted Board member, June 2011
Psychologist, Director at Regens Wagner,
Apsberg

 

 

 

Professional Providers & Caregivers' Advisory Board

Norbert

Chair: Norbert Hodebeck-Stuntebeck (PhD0

Psychologist, Diakonische Stifung
Wittekindshof, Germany

 

 

 

Co-Chair: Mary Ziccadi (USA)

Regional Director, REM, Ohio

 

 

 

Hubert Soyer PhD

Hubert Soyer PhD (Germany)

Pyscologist, Director of Regens Wagner,
Absberg

 

 

 

Fanny Cortes

 Dr Fanny Cortes (Chile)

Director of PWS Clinic, INTA,
University of Chile

 

 

 

Janice L. Forster MD (USA)

Child and Adolescent Psychiatrist, 
specialising in Neurodevelopmental Psychiatry,
Pittsburgh Partnership,

 

 

 

Jackie Mallow

Director of Admissions & Consultative Services
PWS Homes, Oconomowoc, USA

 

 

  John Ford

John Ford  (New Zealand)

Psychologist, Tautoko Services
specialising in behavioural care

 

 

Larry Genstill

 Larry Genstil PhD (Israel) 

Psychologist, Executive Director
Genstil Institute of Human Behaviour

 

 

 

Susanne Blichfeldt, MD

 Susanne Blichfeldt, MD (Denmark)

Glostrup Iniversity Hospital
Pediatric Department L55
Denmark

 

 

Honorary Past President (1991-98)
and founderJean PM
Jean Phillips-Martinsson
(UK & Sweden)