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From: Giorgio - IPWSO President
Date: 30 Sep 2003
Time: 05:14:16 -0000
Remote Name: 151.25.90.70
Hello Nathalie! Nice hearing from you. You are right, sharing is so important, especially for those who live in countries where PWS is not known or where no assistance is given by their public health service. France has a very organised PWS association, whose references you can find under the Member List inside this web page. I think you are referring to the web page created by Mrs Gelci Galera in Brazil to assist families in this huge country and try to collect as many families as possible to re-organise the national SPW association. I am following this case closely. I am Italian and the happy and proud father of Daniele, a 27 years old boy with PWS. Amitié Giorgio
From: dobrogea pestisor delta
Date: 01 Jul 2005
Time: 06:50:52 -0700
Remote Name: 86.104.227.145
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