IPWSO, International, Prader-Willi Syndrome, organisation, delegates, countries, membership

Member Countries

(countries who do not yet have a PWS Association, or who are not subscribed voting members of IPWSO, but who are affiliated in name)

A B C D E F G H I J K M N O P Q R S T U V W X Y Z

Associate Members

Albania flagAlbania

Professional delegate: Lindita Grimci MD. PHD.
Pediatric Endocrinologist.
University Hospital Center "Mother Teresa"
Pediatric Deparment. Rd. Dibrës
Nr. 370, Tiranë, Albania.
Home: Bul. "Zhan D'Ark", Kulla 1, tel. 00355 (4) 265 534,
Mobile 00355 (0) 68 2066 584,

Algeria flagAlgeria

Professional delegate: Dr. Karima Hamdani
Chemin Sidi Yahia cité des 20 logts Bt
1 N°1 Bir Mourad Rais Algiers Algeria
Tel. :+ 213 21 56 26 59

Bolivia flagBolivia

Professional delegate: Dr. Ramiro Alvarado Neurosurgeon,
P.O. Box 1701, La Paz Bolivia
Tel. +591 22 713511 (home), +591 22 423708 (work), Fax +591 22 423708
Parent delegate: Luz Elizabeth Tejada Velez
Casilla N.6861, La Paz - Bolivia

Bahrain

Bahrain


Professional Delegate:
Dr Haya Alkhayyat, MD, DCH, MSc, CABP, FRCPCH
Consultant Paediatrician and Endocrinologist,
Bahrain Defence Force Hospital,
Kingdom of Bahrain
Tel: +973 39675588
Email: hayaalkhayyat(at)hotmail.com

Boznia Herzegovina flagBoznia Herzegovina

Professional delegate: Alma Toromanovic, MD
Division of Endocrinology,
Department of Pediatrics,
University Clinical Center Tuzla
Trnovac bb Tuzla 75000
Bosnia and Herzegovina
Tel. +387 35 255 132, Fax: + 387 35 303 700

BrazilBrazil


Professional delegate:

Bulgaria flagBulgaria

Professional delegate: Dr Radka Tincheva,MD
Head of Department of Clinical Genetics
University Pediatric Hospital
Blvd. Ivan Geshov 11, 1606 Sofia, Bulgaria
Parent delegate: Stanimir Tsonev
7, Raina Knayginya Str. fl. 4 , ap. 11
Sofia - 1309, Bulgaria
home + 35924808244 , mob. +359888642472

China flagChina

Professional delegate: Jinghua Chai, M.D., M.Sc.,
348 Inwood Road, Ardmore PA 19003, USA., Tel. +1 610-658-2885,

DR. Hongmei Song, Dept.of Pediatrics
Peking Union Medical College (PUMC) Hospital
No 1 Shuaifuyuan,Dongcheng
Beijing 100730, China
Tel(and Fax):86-10-65296271

Colombia flagColombia

Professional delegate: Dr Alejandro Velàsquez,
Endocrinologo Pediatra,
Calle 2 sur # 46-55 Fase 1. Clinica Las Vegas,
Consultorio 223- Medellìn- Colombia
Tel 2683763 Celular 3108398091.
Parent delegate: Jorge Restrepo
Apartado Aèreo 11667, Carrera 32B#10-110
Apt 617 Medellìn- Colombia
Telèfono casa: 574-2687886
Telefono celular 57-315-5366897

Costa Rica flagCosta Rica


Parent Delegates:  Kensy Jimenez: (Phone) 88-00-63-68
email:  kensyjimenezspw(at)hotmail.com
Professional Delegate: Daniela Zamora: (Phone) 87-44-91-90 

Croatia flagCroatia

Professional delegate:  Prim. Dr.Jasenka Ille,
KBC Zagreb, Rebro, Kispaticeva 12
10000 Zagreb, Croatia, Tel. +385 1 2388331
Parent delegate: Ivka Cop
Bukovacka 158, 10000 Zagreb, Croatia
Tel. +385 91 5190661,

Cuba flagCuba

Professional Delegate: Alis León Oliver
Avenida 41 número 3805 entre 38 y 40, Caimito,
Provincia La Habana, Cuba
Parent delegate: Ilieva Vazquez Bello
9525 SW 24 St. Apt. D-102
MIAMI FL 33165, USA, tel. +1 305 207-5739

Ecuador flagEcuador

Parent delegate: Jorge Oswaldo Zúñiga Gallegos,
Urbanización Carlos Montufar,
Calle Isla Puná No. 8, San Rafael,
Casilla Postal No. 17-23-159, Quito Ecuador
Tel. +593 2 2860-985, +593 2 2865-047

Other contact: Armando Castellanos
Reina Victoria 17-37 y La Niña
Quito-Ecuador, Telefono: (593 2) 2683 647

Egypt flagEgypt

Professional delegate: Osama K Zaki,MD
Cytogenetics Unit. Dept Of Pediatrics,
Ain Shams University, 8, Kamal Raslan St. Heliopolis,
Cairo 11771 Egypt,
Tel: +20 2 2717445, Fax: +20 2 2731933
Parent delegate: Omnia Mourad
One Mohamed El Nadi Street
Makram Ebeid, 6th Zone, Nasr City, Egypt

Honduras flagHonduras

Professional delegate: Dr. Jose Armando Berlioz Pastor,
Colonia Altos de Miramontes, Diagonal Aguan # 2751
Tegucigalpa, M.D.C. Honduras, C.A.
Phones: (504) 232-4429 (Home);
(504) 221-1939 (Office); (504) 992-4569 (Mobile).

 
Hungary


 Dr Dóra Török MD, PhD
Semmelweis Universtiy, 2nd Dept of Pediatrics
Tuzolto u. 7-9 Budapest, 1094, Hungary
Phone: +36 20 825 9342
email: torokdora(at)gmail.com  

Parent delegate: Zsuzsanna Szalay
Hungary, 2053, Herceghalom,
Arany János u. 25.
Phone: +36 70 5774759, www.PWSHungary.hu 

 
Iceland flag     Iceland


Professional delegate:
Ingólfur Einarsson, barnalæknir / Paediatrician, MRCPCH
Sérfræðingur í fötlunum barna / PGDip (Paediatric Neurodisability)
Greiningar- og ráðgjafarstöð ríkisins / The State Diagnostic and Counselling Centre
Digranesvegi 5
IS-200 Kopavogi
Ísland / Iceland
Sími 510-8400 / Tel.
+354 510-8400
Fax 510-8401 / Fax. +354 510-8401
www.greining.is / http://www.greining.is/english/

 

Iran

Professional delegate:
Dr Aria Setoodeh,
Children's Medical Center,
Dr Gharib Ave
Tehran
IRAN
Cellphone: +98 912 172 3561

Jordan flagJordan

Professional delegate: Dr. Musa Suliman
King Hussein Medical Center / Pediatric Department / Amman / Jordan
Post Office 1574, Jordan - Zarqa 13110
Mobile phone: +777 326 366 

Kazakhistan flagKazakhistan

Parent delegate: Askar Sadykov Turtubekovich
23 Serikbaev st.146
070010 - Ust'-Kamenogorsk, Kazakhstan
Tel. 8-10-7232-540647, Mobile +7-777-5100902 E

Kenya



Professional delegate:
Dr Paul Laigong, MBCHB, MMED
Paediatric Endocrinologist
Gertrude's Children's Hospital
P O Box 460-00202
Nairobi, Kenya
Tel: +254203763372 or +254207206000

Latvia flagLatvia

Professional delegate: Dr. Iveta Dzivite
Head of Children's Endocrinology
Centre of Latvia, 45, Vienibas gatve,
Riga Latvia LV - 1004
tel: + 3717064406, tel/fax: +371 7064436

Lebanon flagLebanon

Professional delegate: Dr Eliane Khallouf
Pediatric department.
Hotel Dieu de France Hospital
Beirut. Lebanon. Tel. 009613808805.
Parent delegate: Rita Sfeir
Sanofi-Aventis, Georges Picot street
Starco Building Bloc B first floor
Beirut P.o. box : 110 697. Lebanon
Tel +961 1 374 555 ext 378
Mobile +961 3 496878,

Libya flagLibya

Professional delegate: Nadia Omar Alghazir
Paediatric endocrinologist
P.O box : 7932 Libya Furnaj - Tripoli
Telephone number : +218913221257

Lithuania flagLithuania

Professional delegate: Dr. Natalja Tkacenko
Mobile +370-684-01070

 Macedonia

Macedonia

Professional delegate: Dr. Elena Sukarova Angelovska,
Department of endocrinology and Genetics, Pediatric Clinic,
Vodnjanska 17, Skopje, Macedonia 
Parent delegate: Kostoska Valentina
Sopiste No 54 A, 1000 Skopje, Macedonia

Malaysia flagMalaysia

Professional delegate: Dr. Yew Sing Choy
Pediatric Institute Kuala Lumpur Hospital
Jalan Pahang , 50586 Kuala Lumpur, Malaysia
Tel +60 3 261 55555 ext 6889, Fax: +603 2694 8187,
Parent delegate: Norliza Mohd Din & Azhar Talib,
Nr. 25, Jalan Warisan Puteri A3
Taman Warisan Piteri,
71770 Seremban, N.Sembilan,
Malaysia Tel: 017-3333940/012-3395232,

Moldavia flagMoldavia

Professional delegate: Dr. Victoria Sacara
Apt. 144, 21 Dacha str., Kishinev, Moldova MD 2038,
Tel: +373 719670,
Parent delegate: Arpenti Diana
Str. Nicolae Milescu Spataru 3 ap. 137
Chisinau, 2044, Republica Moldova

Other contact: Baranova Tatiana
Apt.12, 23 Renashterey str.
Kishinev, Moldova 2005, Tel. + 226386

Morocco flagMorocco

Professional delegate: Prof. Gaouzi Ahmed
Departments of Paediatrics,
Unit of paediatric endocrinology,
Children's university Hospital Rabat
Office: Avenue Ibn Rochd
B.P. 6542 Rabat -Institut
Home Address: app n°9 Imm. Chifaa ,
Bd Al arar Hay Riad Rabat Morocco
Tel. 037 67 13 25 (work),
Tel. (212) 037 71 26 87 (home),
Parent delegate: Mme Fatima Mandili
6 bis Rd doukkala rue Soulaimane Azzmi Appt
4 Qu Hopitaux 20000 Casa, Maroc.

Nicaragua flagNicaragua

Parent delegate: Alicia Rodriguez
13756 SW 48 ST., Miami, Florida 33175:
USA, Mobile +1 305-318-6087

Nigeria flagNigeria

Parent delegate: Charles Ch. Mayberry,
Erdkampsweg 6, 22335 Hamburg , Germany
Tel +49 40-5204217, Fax +49 40-5203317

Sultanate of Oman flagOman, Sultanate of

Parent Delegate: Mansoor Hamed

Pakistan flagPakistan

Professional delegate: Dr. Jamal Raza
Associate Professor, National Institute of Child Health,
Rafiquee Shaheed Road, Karachi 75510
Karachi, Pakistan
Tel: 9201261-4 ext 223, Mobile: 0333-2184376
Parent delegate: Ghazala Nomani
26 Cedar St., Bergenfield, NJ 07621 USA
Tel +1 201 244 9026,

Panama flagPanama

Professional delegate: Dr. Liliana Angelica Neil Burgos,
Pediatra Endocrinóloga,
Hospital de Especialidades Pediátricas,
Caja del Seguro Social. Vía España, Panamá
Tel. +507 260-1290, Mobile +507 6618 9397.
Parent delegate: Kathia Díaz Arias
San Miguelito Samaria, Sector 4b, casa 161
Panama, Tel: +507 273 9591

Peru flagPeru

Professional delegate: Dr. Alberto Teruya Gibu, Av.
Iquitos 293 La Victoria,
Lima-Peru, Tel. +51-1-4248007
Parent delegate: Rosalva Espino Moscoso
José Pardo 159, Urb. Astete, San Miguel
LIMA,PERU, Tel. +51 1 4206367

Philippines flagPhilippines

Parent delegate: Regina Infante
Blk.3 Lot 10 Phase 5 Adalia Street,
Elvinda Village, San Pedro, Laguna,
Philippines 4023, Tel. + 63 917 5011915,

Other parent contact: Vienne Go Ang
#45 11th Street, New Manila, Quezon City, Philippines.

Peurto Rico flagPeurto Rico

Professional delegate: Alberto Santiago Cornier, M.D. Ph.D. ,
Ponce School of Medicine
Genetic Division, P O Box 7004
Ponce PR 00732, Puerto Rico
Tel. +1 (787) 840-2575 ext. 2218/2213/2156
Fax: +1 (787) 840-5698
Parent delegate: Elsa Alago
Calle El Cerezal F-5 , Jardines de Miramar,
Isabela PR 00662 Puerto Rico
+1 (787) 830-0439 Home,
+1 (787) 645-5483 mobile,
+1 (787) 834-8000 ext. 2214 Work

Portugal flagPortugal

Professional delegate: Drª Clara Loff
Hospital D. Estefânia in Lisbon,
Tel. +351 939 290 679
Parent delegates: Paula Cristina de Sousa Raimundo Barreiro Rebelo
Rua Cidade de Cabinda, nº 22 - 6º Esq.
1800 - 080 LISBOA, PORTUGAL
Tel. +351 218 536 698, +351 967 617 824
+351 937 617 824,

Russia

Professional delegate:
Professional delegate: Dr. Anna Khmyrova
St - Petersburg State Pediatric Medical Academy
Alexsander Matrosov Street, 22,
194100, St-Petersburg, Russia
tel fax Office 007 812 295 10 67
e-mail: annahm76(at)mail.ru

  Saudi Arabia flag
Saudi Arabia

Professional delegate: Dr. Mazin S. Fakeeh MD, FRCP.
Dr. Soliman Fakeeh Hospital.
Palastine st. Jeddah, 21461. Pobox 2537.
Saudi Arabia, Tel. +9662-6655000

Singapore

Professional delegate: Denise Li-Meng Goh,
The Children's Medical Institute, National University Hospital,
Assistant Professor, Dept of Pediatrics,
National University of Singapore
5 Lower Kent Ridge Road, S 119074, Singapore
Tel: (65)-6772-4420, Fax:(65)-6779-7486
Parent delegate: Eric & Lina Khoo
Blk 721 Pasir Ris St 72 #07-115 S510721
Singapore, tel +65 98180582 (hp).

  Slovenia

Professional delegate: Dr. Primoz Kotinik
Parent Delegate:  Tina Volk,
President of Slovenia PWS Association

  Thailand

Professional delegate: Duangrurdee Wattanasirichaigoon, MD
Faculty of Medicine Ramathibodi Hospital, Department of Pediatrics,
270 Rama 6 Rd., Bangkok 10400 Thailand
Tel +66 2201 2782, fax +66 2201 1850
Parent delegate: Jarucha CHAIYASORN
39/279 Moo.11 Klongkhum Bungkhum Bangkok.
10230 Thailand Tel No. 66-2509-4650
Parent delegate: Rungson SUWANVICHIT
105/199 Wangthong House
NavamintaraRd.,Klongkhum Bungkhum,
Bangkok 10240, Thailand
Tel No.66-2374-7455

Turkey flagTurkey

Professional delegate: Prof.Dr. Koray Boduroglu
Hacettepe University Faculty of Medicine
Department of Pediatrics, Division of Genetics
06100 Sihhiye, Ankara, Turkiye
Fax: 0090 312 3115522, Tel: 0090 312 3051173

Uganda flagUganda

Professional delegate: Dr. Edison Arwanire Mworozi MBChB, M MED
Senior Consultant Paediatrician/Honorary Lecturer Clinical Head
Department of Paediatrics abd Child Health
Mulago Hospital/ Makerere University Medical School,
P.O. BOX 7072,
KAMPALA - UGANDA
Tel: 256-41- 542766/ 531875 (Office)
Fax: 256-41-534037, Mobile: 256-772-619355

Uzbekistan flagUzbekistan



Professional delegate:
Shakhrizada T. Sultanova,
Academic Abdullaev Street 56
Tashkent, Repulic of Uzbekistan
Te. +998 71 269 1668,
Mobile +998 90 315 7338

Vietnam flagVietnam

Professional delegate: Prof. Nguyen Thi Hoan
Head of Endocrinology-Metabolic-Genetic Department,
18/879 La Thanh - Dong Da
Hanoi, Vietnam
Tel. +84 4 7752910, Fax +84 4 7754448

Yemen flagYemen

Professional delegate: Ahmed Al-Shehari MD
Pediatric consultant, Head of pediatric departement in Thamar University,
Coordinator for Control Genetic Disease in Yemen,
B.O. BOX ;- 12715 Sanaa -Yemen
el.: 00967711655660
Parent delegate: Yasser Abdurazak Derhim
Yemen-Sana'a-Hada'a Street
Mobile No:+967-71410700

 

 

Dr. Fernando Diniz:
City: São José do Rio Preto
Estate: São Paulo
Street: Av. Murchid Homsi, 1071
Fone: 55 (17) 21396262

 

Looking for a country? Click on the first letter of the alphabet to take you there:

A B C D E F G H J K L M N O P Q R S T U V W X Y Z

To contact any of our delegates, please enquire through our "contact us" page

Member countries of IPWSO

Argentina

Argentina

Professional delegate:
Maria Del Valle Torrado, MD
Billinghurst 2349 2do. E (C1425DTU)
Buenos Aires
ARGENTINA
Tel: +54 11 483037
email: mtorrado (at)fibertel.com.ar
Parent delegate: Guillermo Jose Smith
Vuelta de Obligado 2647 - 5 A (C1428ADQ)
Buenos Aires,
ARGENTINA
Tel: +54 11 15-5937-0212/4788-2653
email: guillermo.smith(at)grupomost.com
website: www.praderwilliARG.com.ar


ArmeniaArmenia

Professional delegate: Albert Matevosyan M.D., Ph.D.
Professor, Head of the Department of Medical Genetics,
Yerevan State Medical University after M.Heratsi,
Head of the Republic Center of Medical Genetics,
President of the "Neurohereditary Diseases" Charity Association
Address: 9a, Parpetsi st. apt. 6. "NHD"ChA" NGO,
Yerevan, Armenia, 375002
Tel.: +37410 532480, +37491 212890 (mobil)
Fax.: +37410 535424
email: matev(at)netsys.am or matev2007(at)yahoo.com


AustraliaAustralia

Professional delegate:
Dr. Ellie Smith,
Clinical Assoc. Professor
Senior Staff Specialist
Executive Officer, Dpt Cytogenetics
The CHildren's Hopsital at Westmead Clinical School
Cnr Hawkesbury Road & Hainsworth St, Westmead.
Locked Bag 4001, Westmead NSW 2145
AUSTRALIA 
Tel.+61 29527 9795 (home) ,+ 61 2 9845 3237 (work),
email: ellies(at)nch.edu.au
Parent delegate:
Janine Lowe
email: janene.lowe(at)bigpond.au
website: www.pws.org.au

 

Austria flagAustria

Professional delegate:
Dr. Barbara Utermann
Dr.-Karl-Ottstr.9
A-6071-Aldrans
AUSTRIA
Tel:0043 10 392725
email: b.utermann(at)aon.at
Parent delegate:
Dr Monika Lederer
Holzgasse 15
A-6020 Innsbruck
AUSTRIA
Tel: +43 664 3401602
email: moni.lederer(at)hotmail.com
website: http://www.prader-willi-syndrom.at/

 

Belgium flagBelgium

Professional delegate:
Annick Vogels, M.D., Ph. D., C.M.E. KU Leuven,
Herestraat 49
B-3000 Belgium, Tel: 32 16 345903,
Parent delegate:
Wilfried De Ley,
Prader-WilliVereniging vzw Belgium,
Boechoutsesteenweg 54, B-2540 Hove, Belgium
Tel: +32 3455 6691, Fax: +32 3 221 07 23

Canada flagCanada

website: http://www.fpwr.ca
Professional delegate: Dr. Glenn Berall
BSc, MD, FRCP(C)
4001 Leslie Street, Toronto, ON M2K 1E1
Canada, Tel: +1 416-756-6222
Fax: +1 416-756-6853,
E-mail: gberall@nygh.on.ca
Parent delegate: Tanya Johnson
2354 Robin Drive, Mississauga, ON L5K1S9
email: tanya.johnson@fpwr.ca
phone: +905.339.992

 

Chile flagChile

Professional delegate: Dra Fanny Cortes
Tabancura 1515 Of 210, Vitacura,
Santiago
Tel: +56.2.678.1478
Fax: +56.2.215.2582
Parent Delegate: Carlos Molinet
1a Transversal 10252, Dpto 41, El Bosque,
Santiago, Chile
Tel: +56. 2559 2343 +56 9 2769068
email: info@prader-willi.cl
website: http://www.prader-willi.cl/

Czech Republic flagCzech Republic

Professional delegate:
Pavel Bircák
Krabcice 75, Krabcice 411 87 Czech Republic
mob. +420 731 788487
Parent delegate: Ing.Hana Verichová
Na stráni 4, 101 00 Prague 10
Czech Republic, tel. +420 271 742 380

Denmark flagDenmark

Professional delegate: Susanne Blichfeldt MD,
The Danish PWS Association,
Kildehusvej 12,
DK-4000 Roskilde, Denmark
Tel: +45 4637 3204, +45 4637 3203
Parent delegate:
Jytte Helgogaard
Heibergs Have 67
DK 4300 Holbaek
Denmark
website: http://www.prader-willi.dk/

Estonia flagEstonia

Professional delegate: Vallo Tillmann, MD, PhD,
Professor of Paediatrics, Director and Chairman,
Tartu University Children's Hospital
Lunini 6, 51014 Tartu, ESTONIA
Phone:+372 7 319 500 (direct)
+372 7 319 501 (secretar Liidia Koik)
Fax: + 372 7 319 503
Parent delegate: Renata Soukand
Prader-Willi Sundroomi Uhing MTU
Tontsu kinnistu, Umbusi kula
Poltsamaa vald
Jogeva maakond 48026
ESTONIA
Tel: +37 250 22394,  +37 27121234
email: renata(at)folklore.ee 

Finland flagFinland

Professional delegate: Dr. Risto Lapatto
HUCH Hospital for children and adolescents
University of Helsinki,
P.O.Box 281,
FIN-00029 HUS, Finland
tel +358-50-4286413
Parent delegate:
Jarmo Papinniemi
Hiihtäjäntie 6 B 31
00810 Helsinki, Finland
tel +358-50-3103029
website: http://www.pws-yhdistys.fi/

France flagFrance

Professional delegate: Pr. Maïthé Tauber
Unité d'Endocrinologie, maladies osseuses,
Génétique et gynécologie médicale,
Hôpital des Enfants, 330 av de Grande Bretagne
TSA 70034, 31059 Toulouse Cedex 9
Tel 33 5 34 55 85 55 51,
Fax 33 5 34 55 85 55 58
www.prader-willi.fr
Parent delegate: Francois Besnier
39 rue Félibien 44000 Nantes, France
Tél : +33 2 40 47 82 49

Germany flag

Germany

Professional delegate:
Dr Constanze Lammer
Kinderklinik St Bernward Krankenhaus
Treibestr. 9
D-31134 Hildesheim, Germany
phone: +49 512.1905704
email: constanze.laemmer(at)t-online.de
Parent delegate: Monika Fuhrmann,
Weiherstr. 23, D-68259 Mannheim, Germany
Tel: +49 621 799 2193
website: http://www.prader-willi.de/

Greece flagGreece

Professional delegate: As. Professor Dr. Christina Kanaka-Gantenbein, MD.,
Pediatriciac Endocrinology and Diabetes
1st Department of Paediatrics,
University of Athens
52 Kifissias Ave., 115 26 Athens, Greece
Tel. +30 1 777 9909,
Parent delegate: Maria Papaiordanou
Ploutonos 1 & Themistokleous St.
17455 Kalamaki - Alimos, Athens, Greece
Tel: +30-210-981-8179, fax: +30-210-413-4648

India flag

India

Professional delegate: Dr. Anil B. Jalan
MD DCH MCPS
NIRMAN A - 103 , Vardhman Chambers,
Next to Babubhai Jagjeevandas Showrrom,
Above Axis Bank, Sector 17, Vashi, Navi Mumbai, India - 400 705
Tel : 0091-22-6791 0236 / 37
Parent delegate: Shikha Metharamani
16\1,Loudon Street, 3D Loudon Park
Kolkata-700 017 W.Bengal.India
Tel. +91-33-22472765,
cell. phone: +91-9831008191

 Ireland

Professional Delegate: Prof Hilary Hoey,

TCD Dept. of Paediatrics

National Children‘s Hospital, Tallaght

Dublin 24, Ireland, Tel. +353 1 608 3763

E-mail: hhoeydge@indigo.ie

Chairperson: Ann Grassick
36 Gracepark Heights
Drumcondra
Dublin 9
Ireland. 
Home Number 00353 1 8370863
Mobile            00353 87 9354914

Israel flagIsrael

Professional delegate: Varda Gross-Tsur MD.,
POB 2210,
Mevaseret Zion 90805, Israel
Tel: +972 2 5341193, Fax: +972 2 6422481,
website: http://www.pwsil.org.il/site/index-4.asp?depart_id=81131

Italy flagItaly

Professional delegate: 
Giuseppe Chiumello
IRCCS San Raffaele, Università Vita-Salute
Via Olgettina 60, Milano, Italia
Tel: 02 2643 2623
Parent delegate: Valentino Colosso
Via Nicodemi 26, 31015 Conegliano (TV)
Tel. +39 0438-34491 (home), +39 0438-914351
(work), Mobile +39 349-5092188
www.praderwilli.it

Japan

Professional delegate: Yoshiro Kato
3-28-14 Nagaoka, Nagaoka-Kyoshi, Kyoto-fu,
Japan
Telephone: +81 759538595
email: gfa03452(at)nifty.com
Parent delegate: Kazue Matsumoto
Sanjo-cho 33-11, Asiya-city, Hyogo-prefecture,
659-0087Japan, Tel. + 81 797-38-3087
website: www.pwsa-japan.org

Korea flagKorea

Professional delegate: Han-Wook Yoo, M.D., Ph.D.,
Professor & Chairman,
Department of Pediatrics,
Asan Medical Center,
University of Ulsan College of Medicine,
388-1 Pungnap-Dong, Songpa-Gu,
Seoul, 138-736, Korea
Fax:82-2-473-3725, Tel:82-2-3010-3374,
Parent delegate: Jihoon Hong
Suyang Apt 204, Woncheon-Dong 30-5,
Youngtong-Gu, Suwon-City,
Gyonggi-Do,
443-821, Korea
Tel: +82-31-213-9195
Mobile: +82-10-6437-5168
www.pwsakorea.org

The Netherlands flagThe Netherlands

Professional delegate: Prof. Dr. Leopold Curfs
University Maastricht / Academic Hospital Maastricht,
Department Clinical Genetics
P.O. box 1475, 6201 BL Maastricht
The Netherlands, Tel. +31 43 3877850 / +31 43 38775899,
Parent delegate: Gerard Meijwaard
Louis Pasteurpad 28, 6216 EV Maastricht
The Netherlands, tel.: 043 3432371
Prader-Willi/Angelman Vereniging
T.a.v. mw. T. Stranders, Postbus 85278
3508 AG Utrecht, Holland, Tel.+31 30236 3763,
website: www.praderwillisyndroom.nl

New Zealand flagNew Zealand

Professional delegate:
Dr Paul Hofman, MBChB, FRACP Senior Lecturer in Paediatrics
The Liggins Institute, University of Auckland
Private Bag 92019, AUCKLAND
Telephone 64 9 373 7599 ext. 86476
Fax 64 9 373 7497
Parent Delegate:
Melanie Sweet
59a Poto Road
Normandale
Wellington 5010
website: www.pwsa.org.nz

Norway flagNorway

Professional delegate: Kai Fredrik Rabben
Frambu, Sandbakkveien 18,
N-1404 Siggerud, Norway
Tel.: +47 64 85 60 48, Mobile: +47 90 11 18 19
Parent delegate: Ragnhild Øverland Arnesen
Kollbulia 22, N-5124 Morvik, Norway
Tel: +47 5518 4842, mob. +47480 96 709
website: www.praderwilli.no

Poland flagPoland

Professional delegate: Ewa Obersztyn MD, PhD,
Department of Medical Genetics,
National Institute of Mother and Child,
01-211 Warsaw, ul. Kasprzaka 17a, Poland
Tel: +48 22 32 77 490, Fax: +48 22 32 77 152
Parent delegate: Maria Libura
02-132 Warsaw, ul. Baleya 4/11 Poland
Tel +48 22 659 87 78,
Prader-Willi Association Poland
ul Jasnorzewskiej 9/10
01-863 Warsaw
Poland
President: Maria Libura
www.prader-willi.pl

Romania flagRomania

Professional delegate: Szekely Aurelia,
Endocrinologist - doctor in medicine,
Zalau, str. Oborului, nr.10,
Romania,
tel: +40 260/662672, mobile: +40 0742070123,
Parent delegate: Tibi Dan
Str. Simion Barnutiu, nr.97, bl. SB 88, apt.14
Loc. Zalau, Judet Salaj, Cod. 450129 Romania
Tel: + 40 60/616585 or +40 726 248707.
website: www.apwromania.ro

Slovakia flagSlovakia

Professional delgate: Doctor Maria Kusekova
Lomonosovova street 38,
040 01 Kosice,
Slovakia
phone: +421 903 625312, *421 55 6404120
Parent Delegate: Maria Benedekova
Alderova, 12,
040 22 Kosice, Slovakia
Tel. +421 905 165422 website: www.pwsyndrom.sk

South Africa flagSouth Africa

Professional delegate: Dr Engela M Honey,
Departement of Human Genetics,
University of Pretoria, PO Box 2034
0001 PRETORIA, SOUTH AFRICA
Tel: +27 82 5795315
Parent delegate: Rika du Plooy
267 Middelberg Street, Muckleneuk,
0002 Pretoria,
South Africa,
Tel: +27 12 3440241
website: www.praderwilli.org.za

Spain flagSpain

Professional delegate: Dr. Fernando Mulas,
Jefe de Neuropediatria,
Hospital Universitario
„LA FE", Avda. Campanar, 21
46020 Valencia, Spain
Tel: +34 96 386 2700 Ext. 50481
Fax:+34 96 3623194,
website: www.prader-willi-esp.com 
Parent Delegate: Pedro Alvarez Martínez
Calle Alfonso VI, nº 7 - 3º E
26.007 Logroño
La Rioja
teléfono 00.34.649372332

Sweden flagSweden

Professional delegate: Professor Martin Ritzén
Pediatric Endocrinology, Karolinska Hospital
S-171 76 Stockholm, Sweden
Phone: +46 8 5177 2465, Fax: +46 8 5177 5128
Parent delegate: Jean Phillips-Martinsson
Farthings 44 Warwick Park, Tunbridge Wells
Kent TN2 5EF, United Kingdom
Te/Fax +44 1892 549492
Website: www.prader-willi.se

Switzerland flagSwitzerland

Professional delegate: Professor Urs Eiholzer,
Head PEZZ Center for Pediatric Endocrinology Zurich
Möhrlistrasse 69,
CH-8006
Zürich
Tel. +41 44 364 37 00, Fax +41 44 364 37 01
Parent delegate: Doris Bächli,
Im Vogelsang, CH 9477 Trübbach,
Switzerland, Tel: +41 81 783 2601
website: www.Prader-Willi.ch

Taiwan flagTaiwan

Professional delegate: Dr. Shuan-Pei Lin,
Division of Genetics, Dept. of Pediatrics,
Mc Kay Memorial Hospital
92 Chung-San N. Road, Sec 2,
Taipei, Taiwan, Tel:+886 2 2543 3585 / 3089
Fax:+886 2 2543 3642
Parent delegate: Leo Liu
3F., No.3, Lane 357, Songjiang Rd.,
Jhongshan District,
Taipei City 104, Taiwan (R.O.C.)
Tele: +886-2-25175002, Fax +886-2-25175279
website: www.pwsa.org.tw

United Kingdom flagUnited Kingdom (England, Scotland, Wales)

Professional delegate: Prof. AJ Holland,
2nd Floor, Douglas House,
18b Trumpington Road,
Cambridge CB2 2AH,
UK
Tel: +44 1223 746112, Fax: +44 1223 746122
Parent delegate: Jackie Waters,
125a London Road,
Derby DE1 2QQ
England
Tel: +44 1332 365676, Fax: +44 1332 365401
website: www.pwsa.co.uk

United States of America flagUnited States of America

Professional delegate: Suzanne B. Cassidy, M.D.
66 Toyon Lane, Sausalito, CA 94965 USA
Phone: +1-415-332-0588
Parent delegate: Joan Gardner
4710 Bouleau Road
White Bear Lake, MN 55110-3355
Tel: +001 651 4296441

website: www.pwsausa.org