PWS
What is PWS
Prader-Willi Syndrome (PWS) is the most common known genetic cause of life-threatening obesity in children. It is a complex genetic disorder most commonly related to problems along chromosome 15. The genes lacking in people with Prader-Willi Syndrome have a major...
Understanding the Syndrome
By Linda Thornton, National Director PWSA (NZ) Cause of deletion - typical PWS behaviours - hypothalamus and what part it plays - "starvation syndrome" - major behaviour challenges ...
Genetics
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Residential
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Understanding the Person
By Linda Thornton Behaviour is Communication - When do behaviours start? - Why challenging? - communication breakdown - anxiety -avoidance/non-compliance - denial -perseveration/muddledness - frustatration - argumentative - drop in communication levels - compulsive behaviours - blowout/meltdown ...
Understanding the Diet
by Linda Thornton In Prader-Willi syndrome, because there is a dysfunction in the hypothalamus, the brain tells the body it is starving - it must eat. To a person with PWS, eating becomes the only means...
Management of PWS
English German Greek Romanian To read A Comprehensive Team Approach to the Management of Prader-Willi Syndrome on-line you will need the Adobe Acrobat reader. To download Adobe Acrobat Reader, simply...