FamCare

Family Care (FamCare) is a project of IPWSO's designed to support families whose adult son or daughter lives at home.  We know that this can sometimes be difficult and that for living arrangements to work successfully there often have to be many compromises made by parents and other family members.   The support of extended family members and friends is also most valuable to the well-being of the person with PWS and his or her parents. 

Where possible, community support can also play a significant and important role.  Providing an appropriate environment for someone with PWS in all areas of their life will promote good health and longevity.

If you have an older son or daughter - someone who has left school, but is still living at home - and need our help, please answer our questionnaire.  Our FamCare team will do its best to come up with some supportive answers.

FamCare will be producing leaflets on topics connected with the care and management of the syndrome, compiled with your help so that the advice you will receive will come from other parents, as well as professionals.  We hope that this will be helpful to you.  As each leaflet is written and published, it will be made available on this website as well.

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