COVID-19 & PWS blog stories
Guidance on COVID-19:
  • IPWSO statement on COVID-19 (updated 18 March 2020)
  • Pautas para manejo preventivo Coronavirus
  • Coronavirus Erkrankung 2019 (COVID-19) Erklärung an die Mitglieder
  • Le Centre de Référence du SPW et Prader Willi France: Informations du centre de référence sur le coronavirus

Prader-Willi syndrome is a multi-faceted and genetically-determined syndrome. The two main genetic causes and other rarer cause of PWS all involving chromosome 15 give rise to a pattern of atypical early development characterised by extreme floppiness and failure to thrive at birth with the subsequent emergence of severe over-eating and the risk of severe obesity if access to food is not controlled and also to other difficult behaviours, and the presence of learning disabilities, hormonal deficiencies, and specific physical characteristics. With knowledge and careful management and support the person with PWS can live a happy and well-adjusted life within the parameters of the syndrome.  IPWSO strives to offer best international practices for care and information on the syndrome.  If you need support of any kind, please contact us.

Free diagnosis for PWS

(if not available in your country)

IPWSO, Douglas House, 18b Trumpington Road,

Cambridge CB2 8AH, UK

Registered as a charity in England & Wales, charity no. 1182873

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