Membership

Member countries are subscribed members with voting rights;  Associate Member Countries have professional and/or parent contacts who are working with those with PWS.  All delegates can be contacted for help.

 

How do you become a member of IPWSO?  Click here

 

Membership fees

Country Associations with less than 50 members   EUR 50

Country Associations with  50-99 members            EUR 100

Country Associations with 100-299 members         EUR 200

Country Associations with 300-499 members         EUR 500

Country Associations with 500+ members              EUR 1,000

Fees can be paid via iDonate, or to our bank account.  Please contact us for bank details.

(Countries paid for 2019 are shown with *)

Member Countries

Argentina*

Professional delegate:
Maria Del Valle Torrado, MD
Billinghurst 2349 2do. E (C1425DTU)
Buenos Aires
ARGENTINA
Tel: +54 11 483037
email: mtorrado@fibertel.com.ar

Asociación Argentina Síndrome de Prader Willi praderwilliar@gmail.com

 

Sandra Costi (president) sancosti@hotmail.com.  

Claudia Alvarez Lentino (treasurer) clau.lentino@gmail.com 

Claudia Alcazar (secretary) alcazarclau@gmail.com


Parent delegate: Guillermo Jose Smith
Vuelta de Obligado 2647 - 5 A (C1428ADQ)
Buenos Aires,
ARGENTINA
Tel: +54 11 15-5937-0212/4788-2653
email: guillermo.smith@grupomost.com

Australia*

Professional delegate: Dr. Ellie Smith,

Clinical Assoc. Professor

Senior Staff Specialist

Executive Officer, Dpt Cytogenetics

The Children's Hopsital at Westmead Clinical School

Cnr Hawkesbury Road & Hainsworth St, Westmead.

Locked Bag 4001, Westmead NSW 2145

AUSTRALIA 

Tel.+61 29527 9795 (home) ,+ 61 2 9845 3237 (work),

email: ellies@nch.edu.au

 

Parent delegate:

Maria Punturiero

mariacaterina@bigpond.com

 +61 4 1212 2148

website: www.pws.org.au

 

Austria*

Professional delegate:

​Dr. Maria HuberPsychologistRainerstrasse 95020 SalzburgAustriaUniversitätsklinikum Salzburgemail: M.Huber@salk.atphone: 0043 6803269117

Parent delegate: 

Dr. Verena Wanker-Gutmann
Santnergasse 51 /Top 4
5020 Salzburg
Austria
email: verena@gutmann.priv.at
phone: 0043 699 11529914

President:Daniela Rodlauer:email: h.rodlauer@aon.at

website: http://www.prader-willi-syndrom.at/

elisabeth.schnedlitz@alphanova.at
adelheid.reicht@alphanova.at

 

Belgium*

Professional delegate:Annick Vogels, M.D., Ph. D., C.M.E. KU Leuven,Herestraat 49B-3000 Belgium,

Tel: 32 16 345903, and 0474 68 04 07

email: annick.vogels@uzleuven.be

info@praderwillivlaanderen.be  

 

Parent delegate: Anna De Bruyckere
Prader Willi Vlaanderen vzw
Varenstraat 8
B 8301 Knokke-Heist
Belgium
0032 50 51 48 75

email:annadebru@hotmail.com

 

Brazil

Associação Brasileira da Síndrome de Prader-Willi - SPW Brasil

​Avenida Presidente Wilson, 231, Sala 1401 - Centro - Rio de Janeiro - RJ - CEP: 20.030-021
Phone # +55 21 3554-4562
E-mail: info@spwbrasil.com.br
Site: www.spwbrasil.com.br

Parent Delegate:
Liane Mufarrej Motta
liane.motta@spwbrasil.com.br

Financial Director:

André Gesteira de Andrade

andre.gesteira@spwbrasil.com.br

Canada*

Parent delegate: Tanya Johnson

2354 Robin Drive, Mississauga, ON L5K1S9

email: tanya.johnson@fpwr.ca

phone: +905.339.992

Contact: michellecordeiro@rogers.com 

website: http://www.fpwr.ca

 

Chile*

Professional delegate: Dra Fanny Cortes

Monsalve, Lo Fontecilla 441Las Condes, Chile

Tel: +56.2.678.1478

Fax: +56.2.215.2582

email: fcortes@clinicalascondes.cl

 

Parent Delegate: Amalia Balart Salamero

Av. Cristóbal Colón 4484 Depto. 31

Las Condes, Santiago,

Chile

email: info@prader-willi.cl  

ambalart@gmail.com

website: http://www.prader-willi.cl/

Colombia*

Dra. Carolina Cárdenas Vargas Neuropsicológa, Master en Enfermedad Raras

Fundación Ideal para la Rehabiitación "Julio H. Calonje",  Directora Comité Médico de la Asociación (ACSPW)

Dirección: Calle 50 No. 10 A 08 Cali, Colombia

Correo electrónico: neuropsicologacarolinacardenas@gmail.com 

Celulares: (+57) 1 3108256655,  (+57) 1 3214747672

 

Contacto con los padres:

María Elvira García Ronderos. Presidente de la Asociación Colombiana Síndrome de Prader-Willi

Dirección: Lagos de Verde Alfaguara Apto. 902 D Jamundí, Colombia

Sitio web: www.acspw.org 

Correo electrónico:  sindromepraderwillicolombia@gmail.com  

Canal Youtube:  ACSPW

Télefonos: (+57) 1 3153066331 +(57) 1 7429055 

Cyprus*

Professional contact:

Meropi Toumba,MD Pediatric Endocrinologist Aretaeion Hospital, Nicosia, Cyprus tel: +357 22200300 email: meropi.toumba@doctors.org.uk

Parent contact: Stefanos Aloneftis aloneftiss@gmail.com 

 

Czech Republic*

Professional delegate:Pavel Bircák

Krabcice75, Krabcice 411 87 Czech Republic

mob. +420 731 788487

parvel.bircak@seznam.cz

 

Parent delegate: Ing.Hana Verichová

Na stráni 4, 101 00 Prague 10

Czech Republic, tel. +420 271 742 380

h.verichova@seznam.cz

 

Denmark*

Professional delegate: Susanne Blichfeldt MD,

The Danish PWS Association,Kildehusvej 12,

DK-4000 Roskilde, Denmark

Tel: (+45) 29938121

email: s.blichfeldt@dadlnet.dk

 

Parent delegate:Jytte Helgogaard

Heibergs Have 67DK 4300 Holbaek

Denmark

email: jvttehelgogaard@tdcadsl.dk

website: http://www.prader-willi.dk/

 

Caregiver delegate:

Jannik Saupido 

Adress: Dyrehavegårdsvej 13
DK 6000 Kolding
Phone: 25 67 28 68
Email: jannik.sayoudi@dsioxen.dk

 

Estonia*

Professional delegate: Vallo Tillmann, MD, PhD,

Professor of Paediatrics, Director and Chairman,

Tartu University Children's Hospital

Lunini 6, 51014 Tartu, ESTONIA

Phone:+372 7 319 500 (direct)+372 7 319 501

(secretary Liidia Koik)

Fax: + 372 7 319 503

vallo.tillmann@kliinikum.ee

 

Parent delegate: Reet Paloson

rtplsn@gmail.com

Prader-Willi Sundroomi Uhing MTUTontsu kinnistu, Umbusi kulaPoltsamaa valdJogeva maakond 48026ESTONIA

Tel: +37 250 22394,  +37 27121234

 

Finland*

Professional delegate: Dr. Risto Lapatto

HUCH Hospital for children and adolescents

University of Helsinki,P.O.Box 281,FIN-00029 HUS, Finland

tel +358-50-4286413

risto.lapatto@hus.fi
 

Parent delegate: Eneken Tarvainen

eneken.tarvainen@gmail.com

website: http://www.pws-yhdistys.fi

 

France*

Professional delegate: Pr. Maïthé Tauber

Unité d'Endocrinologie, maladies osseuses,Génétique et gynécologie médicale,

Hôpital des Enfants,

330 av de Grande Bretagne TSA 70034, 31059 Toulouse

Cedex 9

Tel 33 5 34 55 85 55 51,

Fax 33 5 34 55 85 55 58

www.prader-willi.fr

 

Parent delegate:Francois Besnier

39 rue Felibien 44000 Nantes, France

Tel: +33 2 40478249

email: f.besnier@wanadoo.fr

 

Germany*

Professional delegate:Dr Constanze Lammer

Kinderklinik St Bernward Krankenhaus Treibestr. 9D-31134 Hildesheim, Germany

phone: +49 512.1905704

email: constanze.laemmer@t-online.de

 

Parent delegate: Monika Fuhrmann,

Weiherstr. 23, D-68259 Mannheim, Germany

Tel: +49 621 799 2193

email: monikafuhrmann@prader-willi.de

email: mm.fuhr@web.de

www.prader-willi.de

Caregiver Delegate: Michael Pethe

Greece*

Professional delegate: As. Professor Dr. Christina Kanaka-Gantenbein, MD.,

Pediatriciac Endocrinology and Diabetes

1st Department of Paediatrics,

University of Athens52 Kifissias Ave., 115 26 Athens, Greece

Tel. +30 1 777 9909,

email: ganten@hol.gr

 

Parent delegate: Vicky Biliou:

vick_devill@yahoo.com

India*

Professional contact: Dr P. Raghupathy BSc, MD (Paed) DCH, FRCP

Senior Paediatric Endocrinologist

Sagar Hospitals # 44/54

30th Cross

Tilaknagar

Jayanagar Ext

Bangalore 560 041

India

tel: +91 80 2244 2800

Fax: +91 80 2244 2700

email: drp.raghupathy@gmail.com

 

Parent contact: Shikha Metharamani

16\1,Loudon Street, 3D Loudon Park

Kolkata-700 017 W.Bengal.India

email: shikha_harlalka@hotmail.com

Tel. +91-33-22472765,

cell phone:  +91-98300 78191

India Prader-Willi Syndrome Association
ipwsa.india@gmail.com 

 

Ireland*

 

Edna F Roche MA, MB, DCH, MRCP, MBA, MD, FRCPI, FRCPCH
Professor in Paediatrics,

 

Discipline of Paediatrics and Child Health
Trinity College Dublin, the University of Dublin and
Consultant Paediatrician/Paediatric Endocrinologist
National Children's Hospital
Trinity Centre for Health Sciences
Tallaght Hospital, Dublin 24 

Tel:  + 353 1 8963763  Fax: + 353 1 8964559
Email:  rocheef@tcd.ie

Parent contact: Ann O'Neill

Monagoul, Ballymacoda, Co. Cork, Ireland

Tel: + 353 87 2522832

website: www.pwsai.ie

Email: annosmile1@hotmail.com

Caregiver contact:

Laura Keane

Managing Director, Resilience Care

Ballymaley Business Park, Ballymaley, Ennis, Co Clare, V95 ECF4

lkeane@resilience.ie

Tel: + 353 65 672 2875 

 

PWS Association

PWSAI

Carmichael Centre

Carmichael House

North Brunswick Street

Dublin 7
Ireland

www.pwsai.ie

secretary@pwsai.ie

Current Chair: Anthony Carr

 

Israel

Professional delegate: Varda Gross-Tsur MD., 

POB 2210, Mevaseret Zion 90805,Israel

Tel: +972 2 5341193, Fax: +972 2 6422481, 

Email: varda.gross@gmail.com

Parent delegate: Moshe Kravitz

kravitzmod@gmail.com

PWS Association

Chairperson: Mrs. Aya Lev Zuckerman

ayalev2510@gmail.com

phone number  +972549119617

http://www.pwsil.org.il

pwsil@walla.com

 

Italy*

Graziano Grugni, MD

Division of Auxology

S. Giuseppe Hospital, Research Institute

Italian Auxological Institute

<g.grugni@auxologico.it>

tel. +39-0323-514247

fax +39-0323-514230

 

Parent delegate: Valentino Colosso

Via Nicodemi 26, 31015 Conegliano (TV)

Tel. +39 0438-34491 (home), +39 0438-914351(work),

Mobile +39 349-5092188 

www.praderwilli.it

Email: vcolosso@gmail.com

Japan*

Yoshiro Kato

Kansai University of Welfare Sciences
Faculty of Health Sciences for Welfare
Zip code : 582-0026 Osaka-fu, Japan
Tel&Fax : +81 72-978-0088
E-mail : gfa03452@nifty.com 

 

 

Parent delegate: Kazue Karita

Sanjo-cho 33-11, Asiya-city, Hyogo-prefecture,

659-0087 Japan,

Tel. + 81 797-38-3087

website: www.pwsa-japan.org

email: kazuekarita0729@gmail.com

 

Caregiver delegate: Satoko Nakagomi

email: snakagomi@yamanashi.ac.jp

http://pwscarenet.wixsite.com/pws-care-net

Malaysia*

Professional delegate: Dr. Yew Sing Choy

Consultant Geneticist/Metabolic Specialist/Paediatrician

Prince Cout Medical Centre

39 Jalan Kia Peng

50450 Kuala Lumpur

Malasia

Fax: 603-21600780

Phone: 603 21600000

and

Subang Jaya Medical Centre

1.Jalan SS12/1a

47500 Subang Jaya

Selangor

Malaysia

Fax: 603 56391209

Phone: 603 5639 1212

and

National Heart Institute

145 Jalan Tun Razak

50400 Kuala Lumpur

Fax: 603 269 46478

email: yewsing.choy@princecourt.com

 

Parent delegate: Norliza Mohd Din & Azhar

39 Jalan Anggerik Doritis 31/126

Kota Kemuning 40460 Shah Alam

Selangor

Malaysia

Tel: 016205832, 0123395232

email: liza@paradym.com.my

email: leezamdin@gmail.com

 

Mexico*

Professional delegate:Dra. Gloria Queipo García,

e-mail: gqueipo@nanolab.com.mx

Parent delegate: Josefina Pérez Rodríguez

Fundación María José, A.C.
Avenida Cuauhtémoc no. 910 Col. Centro
Pachuca, Hidalgo. México C.p. 42000
Tel.: Oficina 7712121818, Celular 7711292799
Email: contacto@fundacionmariajose.org.mx

E-mail: josefinapr@hotmail.com

 

The Netherlands*

Professional delegate: Prof. Dr. Leopold Curfs

University Maastricht / Academic Hospital Maastricht,

Department Clinical Genetics

P.O. Box 1475, 6201 BL Maastricht

The Netherlands, Tel. +31 43 3877850 / +31 43 38775899,

email: leopold.curfs@maastrichtuniversity.nl

 

Parent delegate: Marielle Kuijper

gm@online.nl

 

Stichting Patiëntenorganisatie Prader-Willi Syndroom Nederland

Rembrandttoren (35e verdieping) │Amstelplein 1 │1096 HA Amsterdam│Nederland│

Mob: +31 6 40542551

e-mail: secretaris@praderwillistichting.nl

Treasurer:penningmeester@praderwillistichting.nl 

 

New Zealand*

Professional Delegate: Dr Paul Hofman, MBChB, FRACP

Senior Lecturer in Paediatrics

The Liggins Institute, University of Auckland

Private Bag 92019, AUCKLAND

Telephone 64 9 373 7599 ext. 86476

Fax 64 9 373 7497

email: p.hofman@auckland.ac.nz

 

Parent Delegate: Karen O'Reilly

oreillynz@outlook.com

website: www.pwsa.org.nz

 

Caregiver Delegate: Julie-Anne Quinney

Julie-Anne.Quinney@spectrumcare.org.nz

Alternate Delegate: Geoff Kelly

huttvalley.residences@ccslt.org.nz

PWS Association (NZ) Org
ceo@pws.org.nz

www.pws.org.nz

 

Norway*

Marianne Nordstrøm,
Clinical Nutrition physiologist at Frambu. 

E-mail: mal@frambu.no

Phone: +47 64 85 60 47

Address:  Frambu, Sandbakkvn. 18, 1404 Siggerud, Norway

Parent delegate: Ragnhild Øverland Arnesen

Kollbulia 22, N-5124 Morvik, Norway

Tel: +47 5518 4842, mob. +47480 96 709

ragnhild.arnesen@prader-willis.no

website: https://www.prader-willis.no

Poland*

Professional delegate: Ewa Obersztyn MD,PhD,

Department of Medical Genetics,

National Institute of Mother and Child,

01-211 Warsaw, ul. Kasprzaka 17a,

Poland

Tel: +48 22 32 77 490,

Fax: +48 22 32 77 152

email: eobersztyn@imid.med.pl

 

Parent delegate: Maria Libura

02-132 Warsaw, ul. Baleya 4/11 Poland

Tel +48 22 659 87 78,

marialibura@op.pl

 

Prader-Willi Association Poland ul

Jasnorzewskiej 9/1001-863 Warsaw Poland'

President: Maria Libura

www.prader-willi.pl

 

Romania*

Professional delegate: Szekely Aurelia,

Endocrinologist

Zalau, str. Oborului, nr.10,

Romania,

tel: +40 260/662672, mobile: +40 0742070123,

drszelkelya@yahoo.com

 

Parent delegate: Tibi Dan

Str. Simion Barnutiu, nr.97, bl. SB 88, apt.14Loc. Zalau, Judet Salaj, Cod. 450129 Romania

Tel: + 40 60/616585 or +40 726 248707.

website: www.apwromania.ro

email: tiberiudan1@yahoo.com

 

Slovakia*

Professional delgate: Doctor Maria Kusekova

Lomonosovova street 38,040 01 Kosice, Slovakia

phone: +421 903 625312, *421 55 6404120

 

Parent Delegate: Maria BenedekovaAlderova,

12,040 22 Kosice, Slovakia

Tel. +421 905 165422

email: benedekova@pwsyndrom.sk

All office enquiries:

Ludmila Schenkova

schenk@dkubin.sk

website: www.pwsyndrom.sk

South Africa*

Professional delegate: Dr Engela M Honey,

Department of Human Genetics,

University of Pretoria,

PO Box 20340001

PRETORIA,

SOUTH AFRICA

Tel: +27 82 5795315

email: engela.honey@up.ac.za

 

Parent delegate:

Karin Clarke

5 Clement Way

Bergvliet, Cape Town 7945

SOUTH AFRICA

Tel: +27 83 634 9825

email: karin@discoverymail.co.za​

website: www.praderwilli.org.za

 

Spain*

Professional Delegate: Dra. Mª José Rivero Martín

Jefa de la Sección de Endocrinología Pediátrica del Hospital de Fuenlabrada

C/Camino del Molino, 2

28942 Fuenlabrada (Madrid)

Email: mrivero.hflr@salud.madrid.org

 

Parent Contact: Begoña García

Email: juntadirectiva@aespw.org

 

Caregiver Delegate: Aurora Rustarazo

Email: praderwillisindrome@gmail.com

 

ASOCIACIÓN ESPAÑOLA SÍNDROME DE PRADER WILLI (AESPW)

C/Rio Ter, 2

28913 Leganés (Madrid)

Tel: +34 91 533 68 29

Email: praderwillisindrome@gmail.com

Email: info@aespw.org

www.aespw.org

Sweden*

Professional delegate: Dr Charlotte Hoybye

Assoc Professsor

Dept of Endocrinology Metabolism & Diabetology

KJarolinska University Hospital

S-171 76 Stockholm

Sweden

Tel: 46 851 775379

email: charlotte.hoybye@karolinska.se

 

Parent delegate:

Marie Solin

Umeå

Sweden

Tel: 0046 73 84 66 308

mariesolin65@gmail.com

 

Website: www.prader-willi.se

 

Caregiver delegate: Lisa Boman

Ljusnevagen, 1B S128 48

Bagarmossen

Sweden

Tel: 0046 8 6001053

email: Lisa.Boman@telia.com

 

Switzerland*

Professional delegate: Udo Meinhardt,

MDPEZZ Center for paediatric endocrinology Zürich

Möhrlistrasse 69CH-8006 Zürich

Switzerland

udo.meinhardt@klein-gross.ch

website: www.Prader-Willi.ch

 

Parent Delegate: Deborah Banks
Eigerstrasse 10 
CH - 5453 Remetschwil
Switzerland
056-496 08 85
swiss-parent-rep@prader-willi.ch

 

Caregiver Delegates:  Arne Higgen, Lisiane Gobet

E-Mail: Arne.Higgen@arkadis.ch 

Internet:   www.arkadis.ch

 

Taiwan*

Professional delegate: Dr. Shuan-Pei Lin,

Division of Genetics, Dept. of Pediatrics,

Mc Kay Memorial Hospital

92 Chung-San N. Road, Sec 2,

Taipei, Taiwan,

Tel:+886 2 2543 3585 / 3089

Fax:+886 2 2543 3642

email: zsplin@ms2mmh.org.tw

 

Parent delegate: Leo Liu

3F.,No.3, Lane 357,

Songjiang Rd.,

Jhongshan District,

Taipei City 104,

Taiwan (R.O.C.)

Tel: +886-2-25175002,

Fax +886-2-25175279

leo@otc.org.tw

website: www.pwsa.org.tw

Thailand*

Professional Delegate:

Professor Duangrurdee Wattanasirichaigoon, MD

Faculty of Medicine Ramathibodi Hospital, Mahidol University

Division of Medical Genetics, Department of Pediatrics

270 Rama 6 Rd,

Rajthewi, Bangkok, 10400  Thailand

Tel +66 2201 2782

Fax +66 2201 2783

email: duangrurdee.wat@mahidol.ac.th

 

Parent Delegate 1: 

Vorasuda Jongwattanapaisal
149/1 Soi Khankai2, Phaholyothin 54/4,

Saimai, Bangkok 10220 Thailand
+66 816486864
pinkpraew@hotmail.com

 

Parent Delegate 2: 

Sontaya Karnjanathanalers (also President of PWSA Thailand)
1703/105 Nunthawan Village
Soi onnut 44 Bangchak Sub-District
Phrakhanong Distrct
Bangkok 10260 Thailand
Tel +66 81 613 6143
Email sk.sontaya@gmail.com

 

Caregiver delegate:

Nitcha Khunin, RN

Faculty of Medicine Ramathibodi Hospital, Mahidol University

Division of Medical Genetics, Department of Pediatrics

270 Rama 6 Rd, Rajthewi, Bangkok, 10400

Thailand

Tel +66 2201 2782

Fax +66 2201 2783

email: ningeg8@gmail.com

 

United Kingdom (England, Scotland, Wales)*

Parent Delegate: Mr Danny Leslie admin@pwsa.co.uk

Professional Delegate: Susan Passmore: spassmore@pwsa.co.uk

 

United States of America*

Professional delegate:

Daniel J. Driscoll, M.D., Ph.D., Professor of Pediatrics and Genetics

Hayward Professor of Genetics Research

Box 100296, University of Florida College of Medicine, Gainesville, FL 32610-0296 USA

telephone: 352-392-4104 - fax: 352-392-4049

E-mail: driscdj@peds.ufl.edu

http://www.mgm.ufl.edu/faculty/Ddriscoll.htm

 

Parent delegate: Joan Gardner

4710 Bouleau Road White Bear Lake,

MN 55110-3355Tel: +001 651 4296441

email: jlgmn@me.com

 

website: www.pwsausa.org

Associate Member Countries

Albania

Professional contact: Lindita Grimci MD. PHD.

Pediatric Endocrinologist.University Hospital Center "Mother Teresa"

Pediatric Deparment. Rd. DibrësNr. 370, Tiranë, Albania.

Home: Bul. "Zhan D'Ark", Kulla 1,

tel. 00355 (4) 265 534,Mobile 00355 (0) 68 2066 584,

email:  lgrimci@hotmail.com

 

Algeria

Professional contact: Dr. Karima Hamdani

Chemin Sidi Yahia cité des 20 logts Bt1 N°1 Bir Mourad Rais Algiers Algeria

Tel. :+ 213 21 56 26 59

email: karimah2001dz@yahoo.fr

Armenia

Professional delegate: Albert Matevosyan M.D., Ph.D.
Professor, Head of the Department of Medical Genetics,
Yerevan State Medical University 

 

M.Heratsi,
Head of the Republic Center of Medical Genetics,
President of the "Neurohereditary Diseases" Charity Association
Address: 9a, Parpetsi st. apt. 6. "NHD"ChA" NGO,
Yerevan, Armenia, 375002
Tel.: +37410 532480, +37491 212890 (mobil)
Fax.: +37410 535424
email:matev2007@yahoo.com

 

Australia -

PWS Better Living Foundation Ltd

Managing Director:, James O'Brien

PO Box 377,
Kew
Victoria, Australia, 3101.
Ph +61439853539

email: jamesob@bigpond.com

 

Bahrain

Professional contact: Dr Haya Alkhayyat, MD, DCH, MSc, CABP, FRCPCH

Consultant Paediatrician and Endocrinologist,

Bahrain Defence Force Hospital,

Kingdom of Bahrain

Tel: +973 39675588

Email: hayaalkhayyat@hotmail.com

 

Bangladesh

Professional contact: Dr Fauzia Moshin

Apt no. 2B House #40

Rd#21 Block B, Banani

1213 Dhaka

Bangladesh

ph: 880.2.8855032

email: fauzia_mohsin@yahoo.com

 

Belarus

Professional contact: Dr Natalia Akulevich, MD, PhD

Endocrinologist-Pediatrician

State Center of Medical Rehabilitation

Department of Pediatricis

Makayonka St, 17

220023 Mink

Belarus

Tel: +375 172370779

Fax: +375 1723700769

email: tashagmd@yahoo.com

 

Bolivia

Professional contact: Dr Ramiro Alvarado

Neurosurgeon

P O Box 1701

La Paz

Bolivia

Tel: +591 22 713511 (home)

+591 22 423708 (work)

email: ralvarado@acelerate.com

 

Parent contact: Luz Elizabeth Tejada Velez

Casilla N. 6861

La Paz

Bolibia

Tel. domicilio: +591 22 797045

celular: +591 73565220

email: eliteve19972@hotmail.com

 

Botswana

Professiona contact: Dipesalema Joel MBBChBAO, B Med Sc(NUI), MRCP Ireland(Paeds), Paediatrician/Pediatric Endocrinologist, Associate Director-Paediatric TB and Endocrinology Services
Botswana-Baylor Children’s Clinical Centre of Excellence, Private Bag BR129 | Plot 1836

Hospital Way, Princess Marina Hospital

Gaborone, Botswana

Telephone; +2673190083, Fax; +2673190079

Mobile Phone; +26772510370

E-mail: apsalm@yahoo.com

 

Boznia Herzegovina

Professional contact: Alma Toromanovic, MD

Division of Endocrinology,

Department of Pediatrics,University Clinical Center TuzlaTrnovac bb Tuzla 75000

Bosnia and HerzegovinaTel. +387 35 255 132,

Fax: + 387 35 303 700

email: almatoromanovic@bih.net.ba 

 

 

Bulgaria

Prof. Dr. Violeta Iotova, MD, PhD

Pediatric Endocrinologist

 

First Paediatric Clinic - Head

University Hospital "St. Marina"

1 "Hr. Smirneneski" Blvd.

Varna 9010, Bulgaria

Tel./Fax: +359 52 302 889

 

Parent contact: Stanimir Tsonev

7, Raina Knayginya Str. fl. 4 , ap. 11Sofia - 1309, Bulgaria

home + 35924808244 , mob. +359888642472

email: stzonev02@abv.bg  :

 

China

Chinese Prader-Willi Syndrome Care & Support Center

Hangzhou,

Zhengjiang, China

Email: China-pws@xpwilli.org

Home-page: www.xpwilli.org 

Professional contact: Dr. Chaochun Zou,

Dept.of Child Health Care
The Children's Hospital
Zhejiang University School of Medicine
No. 3333 Binsheng Road, Hangzhou
Zhejiang 310051, China
E-mail: 15067123060@163.com

​​

Parent contact:Xiaojing Lin,

The Chinese Prader-Willi Syndrome Care & Support Center

Liuhe Road, Hangzhou

Zhejiang 310023, China

Mobile:+86-13388558777

E-mail: 373884119@qq.com​

 

Costa Rica

Parent contact:  Kensy Jimenez

Apartado postal 10844-1000 San Jose Alajuelita

Calle Cochea de la ultima parada

300 metros sur-oeste frente a la torre del ice

porton verde

tel: 8312 6116; 8357 8272

email:  hckenja@gmail.com

 

Croatia

Professional contact:  Tatjana Prizi Jakovac

"ERF" Borongajska cesta 83f

10000 Zagreb, Croatia

Mobile: +385 91 5011 240

email: tatjana.prizi-jakovac@vz.htnet.hr

 

Parent contact: Ivka Cop

Bukovacka 158, 10000 Zagreb, Croatia

Tel. +385 91 5190661,

email: pws.cro@gmail.com

 

Cuba

Professional contact: Dr. Loisel Bello Ulloa

Especialista en neumología,

Hospital Provincial docente Antonio Luaces Iraola
Calle Cuba 311 % 1 y 2 Vista Alegre
Municipio Ciego de Avila, Provincia Ciego de Ávila, Cuba
Teléfono: +53 133 20 1082,  Mobile +53 54041398,

Email: loiselb@ali.cav.sld.cu

 

Parent contact: Marlen Román García

Licenciada en Educación Especial, Pedagoga clínica,

Centro de Orientación y Diagnóstico Ciego de Ávila,

Calle Cuba 311 % 1 y 2 Vista Alegre, Municipio Ciego de Ávila,

Provincia Ciego de Ávila, Cuba
Teléfono: +53 133 20 1082

Email: loiselb@ali.cav.sld.cu

Dominican Republic

Professional contact: Dra Cristina Lopez Diaz

Neurologo-Neuropediatra

Grupo Medico Naco

C/ Fantino Falco No.12

Suite No.2, 2do piso

Esanche Naco

Santo Domingo

Rep Dom

Tel: +809 685 5544

cel: +809 759 8800

email crisiopezdiaz@hotmail.com

 

Parent contact: Julia Bonelly

Continental Express, SA 5171

P O Box 25296

Miami FLA 33102, USA

Tel: +1 809 582 3417

email: jbonnelly@navierasbr.com

 

Ecuador

Parent contact:

Parent contact: Armando Castellanos

Reina Victoria 17-37 y La Niña

Quito-Ecuador, Telefono: (593 2) 2683 647

email:  iznachi@gmail.com

 

 

Egypt

Parent contact: Prof Dr Mohd Anwar Khalaf

Magrabi Hospital & Centers

El Sayeda Nafisa Square

124 Manial El Roda

Cairo 11553

Egypt

Mobile (202) 0100 1787812

 

email:

khalafmohamed@hotmail.com

mohamedanwarkhalaf@gmail.com

 

El Salvador

Professional contact:  Dr Billy Fuentes

3rd Calle Poniente y 79 Av Norte

Local No. 110

Condominio Las Alquerias

Colonia Escalon

San Salvador

El Salvador

Centro America

tel (work) +503 2744936

email:bimifu@hotmail.com

 

Parent contact: Mario A. Mendez

Colonia Portico SanAntonio #13

A Calle San Antonio Agad

San Salvador

El Salvador

Centro America

Tel: +503 284 4032

email:marionmenra@hotmail.com

 

 

Fundación Prader Willi (FSPW)

C/ Arturo Soria 263 B, Bajo B

28033 Madrid, Spain

Tel: +34 914 352 250 / +34 620 082 172

fundacion@praderwilli.es

www.praderwilli.es

 

Professional Delegate:

Dra Raquel Corripio Collado

Médico Senior Coordinador de la Unidad de Endocrinología Pediátrica. Servicio de Pediatría. Parc Taulí Sabadell. Hospital Universitario. UAB.

Parc Tauli 1

08208 Sabadell, Spain

Tel: +34 93 723 10 10 ext 21005

rcorripio@tauli.cat

 

Parent Delegate:

Fernando Briones Alonso

fbriones@praderwilli.es

 

Caregivers Delegate:

Marta Fernández López

Psicóloga educativa

martaf@praderwilli.es

 

 

Georgia

Professional contact: Prof. David Metreveli

Vice President of Georgian Society of Endocrinology,

Assoc. Professor of Tbilisi State Medical University,

Director of David Metreveli Medical Centre Ltd

,9 Tsinandali St. Tbilisi,

Georgia, 0144Tel:   + 995 32 2190 007, (work)       

+ 995 577 411 366 (Mob)

Fax:  + 995 32 2773 348

email:

 

Professional  contact:

Ekaterine Kvaratskhelia MD, PhD

Endocrinolgist, Pediatric Endocrinologist

David Metreveli Medical Center, "DMMC"Georgian Foundation for Genetic and Rare Diseases,

"GeRaD"  Tbilisi,

Georgia Tsinadali St, Tbilisi,

0144, Georgia

Tel: +995599435363 (Mob.)

Fax: +99532 277 60 67

E-mail:   

Parent & Professional delegate: Dr Ana Iashvili

Pediatrician.  Consultant of medical  TV Channel of "TV Pulse" in questions of the  rare  diseases

Tel:    +995 322 965 809

Mob:  + 995 577 37 87 59

email:  ano.iashvili@yahoo.com

Tel: + 995 557969112

Guatemala

Professional contact: Licda. Q.B. Mayra Urízar, Laboratorio Bioanalisis 18 Av. 4-50zona 3. Quetzaltenango, Guatemala. C.A.

tel +502-77674597

celular +502 54070806.

e-mail:

 

Parent delegate: Luis Barrios Izaguirre

6a. calle "C" 4A-25 zona 9. Los Cerezos

IQuetzaltenango. Guatemala. C.A

.tel +502-77677202 cel +502-55060539

e-mail:  luisitobarrios@gmail.com

 

Honduras

Professional contact: Dr Ramon H. Alvarenga C,

Hospital Infantil Privado

Bario La Granja, frente a centro medicl hondurefio

Comayaguela

F.M. Honduras

Centroamerica

Phone: (504) 2239 0484

email: ramonalvarenga0@gmail.com

corquin25@yahoo.com

 

Parent contact: Maria Del Rosario Murillo Avilez,

Residencial San Carlos, Bloque 21 casa 08,

Choloma, Cortes, Honduras
Celular; +504 3228 9687.

E-mail: rosariomurillosps@gmail.com

 

Hong Kong

Professional and parent contact:

Dr Chim Tsui Shan,

Shirley Shop C151, 2/F,Kwai Chung Plaza,Kwai Fong, NT,Hong Kong

Phone: 852-96018098

E-mail: hammerrocksc@gmail.com

Parent contact; Rayon Wan

email: rayonwan3@gmail.com

Phone: +852 6477 1009

 

Hungary

Dr Dóra Török MD, PhD

Semmelweis Universtiy, 2nd Dept of PediatricsTuzolto u. 7-9 Budapest, 1094, Hungary

Phone: +36 20 825 9342

email: torokdora@gmail.com  

 

Parent contact: Zsuzsanna Szalay

Hungary, 2053, Herceghalom,

Arany János u. 25.Phone: +36 70 5774759,

email: szalay@pwshungary.hu

 

 

Iceland

Professional contact:  Ingólfur Einarsson,

barnalæknir / Paediatrician, MRCPCH

Sérfræðingur í fötlunum barna / PGDip (Paediatric Neurodisability)

Greiningar- og ráðgjafarstöð ríkisins / The State Diagnostic and Counselling Centre

Digranesvegi 5IS-200 KopavogiÍsland / Iceland

Sími 510-8400 / Tel. +354 510-8400

Fax 510-8401 / Fax. +354 510-8401

www.greining.is /

http://www.greining.is/english/  

 

Indonesia

Professional contact:  Prof. Dr Jose RL Batubara, PhD, SpAK

Pediatric Dept

University of Indonesia

JI Salemba Raya no.6

Jakata 10340

Indonesia

Tel: +622 13100669

+628 168 14707

email: josebatubara@gmail.com

 

Iran

Professional contact: Dr Aria Setoodeh,

Children's Medical Center,

Dr Gharib Ave

Tehran

IRAN

Cellphone: +98 912 172 3561

email: arset59@yahoo.com

 

Jamaica

Professional contact: Dr Pauline Williams-Green

Family Physician

Linstead,

St Catherine

Jamaica

Cell: 8555934

email: paulinemeg@gmail.com

 

Jordan

Abeer Alassaf, MD,
Assistant Professor of Pediatric Endocrinology,

Assistant Dean for Students and Graduates Affairs,
The Faculty of Medicine/ THe University of Jordan,
dr_abeerassaf@hotmail.com

a_alassaf@ju.edu.jo

 

Kazakhistan

Parent contact: Askar Sadykov Turtubekovich

23 Serikbaev st.146070010 - Ust'-Kamenogorsk, Kazakhstan

Tel. 8-10-7232-540647,

Mobile +7-777-5100902 

email: askar_tau@yahoo.com

 

Kenya

Professional delegate:Dr Paul Laigong, MBCHB, MMED

Paediatric EndocrinologistGertrude's Children's Hospital

P O Box 460-00202Nairobi, Kenya

Tel: +254203763372 or +254207206000

email: drlaigongp(at)yahoo.com

email: plaigong(at)gerties.org
 

Kosovo

Professional delegate: Dr Vjosa Muliqi Koton

Pediatric Diabetologist

University Clinical Center of Kosovo

Dept of Endocrinology

Rrethi i QKUK p.n.

Prishtina 10000

Kosovo

Tel: +377 441 85637

email: vjosakotori@hotmail.com

 

Kuwait

Professional Delegate:

Dr. Ibrahim Elsayed Abdalla

Consultant Endocrinology and Diabetes

American Board , Cornell University, USA

Inaya Medical Center, Kuwait

 

Address: Kuwait

                Salmyia 22095

                PO Box: 9470

Tel:   +965-973-72-789

Mail: abdalla788@hotmail.com

 

Parent Delegate:

Michelle Bosse

mmbosse@aol.com

 

Latvia

Professional delegate: Dr. Iveta Dzivite

Head of Children's Endocrinology

Centre of Latvia, 45, Vienibas gatve,

Riga Latvia LV - 1004

tel: + 3717064406,

tel/fax: +371 7064436

email: dzivite@bkus.lb

 

Lebanon

Professional delegate: Pascale Karam, MD

Director of Outpatient Department

Dept of Pediatrics & Adolescent Medicine

American University of Beirut-Medical Centre

Riad El Solh

Beirut 1107 2020

Lebanon

 

Tel: 961 1 350000 ext 7950/59 5516

Fax: 961.1.370781

email: pk06@aub.edu.lb

 

Parent Delegate: Rita Sfeir

Adonis- Rue Rebaya

Tilai Adonis Building

First Floor

Kesrouan

Lebanon

Tel: 00 961 9 224133

Fax 00 961 9 224133

email: ritasfeir88@gmail.com

 

 

Libya

Professional delegate: Nadia Omar Alghazir

Paediatric endocrinologist

P.O box : 7932 Libya Furnaj - Tripoli

Telephone number : +218913221257

email: n.alghazir@yahoo.com

 

Lithuania

Professional contact: Dr. Natalija Smetanina
Department of Pediatric Endocrinology
Kaunas University Hospital,

Eiveniu str. 2, Kaunas, LT-50009, Lithuania

Mobile +370-684-01070

E-Mail: natalija.smetanina@gmail.com

 

Parent contact: Vilma Rute

Kretingos g. 14-9, Palanga LT-00132
Lithuania/ Lietuva, Tel. +370 616 14151

E-mail: rute.vilma@gmail.com

 

Macedonia

Professional delegate: Dr Elena Sukarova Angelovska

Dept of Endocrinology and Genetics

Paediatric Clinic,

Vodnjanska 17

Skopje

Macedonia

tel: +389 70 358582

email: esukarova@yahoo.com

 

Parent delegate: Kostoska Valentina

Sopiste No.54a

1000 Skopje

Macedonia

email: zujica_filipova@hotmail.com

email: emanuela-mak@hotmail.com

Malta

Professional delegate: Dr John Torpiano

Dept of Paediatrics

Mater Dei Hospital

Tal-Qroqq Msida MSD 2090

Malta

email: john.g.torpiano@govt.mt

 

Parent delegates:

Patrick and Danielle Mangion

+35699858252

mangionster@gmail.com

 

Moldavia

Professional delegate: Dr. Victoria Sacara

Apt. 144, 21 Dacha str.,

Kishinev, Moldova MD 2038,

Tel: +373 719670,

email: vsacara@mednet.md

 

Parent delegate: Arpenti Diana

Str. Nicolae Milescu Spataru 3 ap. 137

Chisinau, 2044,

Republica Moldova

email: diana_arpenti@yahoo.com

 

Morocco

Professional delegate: Prof. Ahmed Gaouzi

Departments of Paediatrics,

Unit of Paediatric Endocrinology,

Children's University Hospital Rabat

Office: Avenue Ibn Rochd

B.P. 6542 Rabat -Institut

Home Address: app n°9 Imm.

Chifaa ,

Bd Al arar Hay Riad Rabat

Morocco

 

Tel. 037 67 13 25 (work),

Tel. (212) 037 71 26 87 (home),

email a.gaouzi@um5s.net.ma

 

Parent Delegate:

Asmaa Chakkour (sibling)

email: asmaa.chakkour93@gmail.com

Nepal

Professional delegate: Dr Ansumali Joshi

Consultant Endocrinologist

Alka Hospital

Jawalakhei

Lalitpur

Nepal

P O Box 24255

Fax: 00977-5547196

Tel: 0097 1.5553333

email: ansujoshi@yahoo.com

Mobile: 0097 5547196

 

Nicaragua

Parent delegate: Alicia Rodriguez

13756 SW 48 ST.,

Miami, Florida 33175:

USA,

Mobile +1 305-318-6087

email: alicia_ni@yahoo.com

 

Nigeria

Professional delegate: Yarhere Iroro E.

Dept of Paediatrics and Child Health

Universityh of Port Harcourt Teaching Hospital

PMB 6173

Port Harcourt

Rivers State

Nigeria

Tel: +234 706798148

+234 708 7417677

email: iroroy91@yahoo.com

 

Oman, Sultanate of

Parent Delegate: Mansoor Hamed

email: mansoor_hamed(at)hotmail.com

Ontario Prader-Willi Syndrome Association

PO Box 73514

Toronto, ON  M6C 4A7

Jennifer Coens | Executive Director

Email: ontariopws@gmail.com 

Phone: 416-481-8657

Toll Free: 1-800-563-1123

 

www.opwsa.com 

 

Palestine Territory

Professional delegate: Dr Hasan Eideh

Paediatric Endocrinologist

Palestinian Medical Complex

Ramallah

Tel: 009 705 9871 7140

Fax: 009 702295 1234

email: hasan_eideh@yahoo.com

 

Pakistan

Professional delegate: Dr. Jamal Raza

Professor of Paediatrics

Paediatric Endocrinologist

National Institute of Child Health,

Rafiquee Shaheed Road,

Karachi 75510

Pakistan

Tel: 9201261-4 ext 223,

Mobile: 0333-2184376

jamal.raza@aku.edu

 

Parent delegate: Ghazala Nomani

26 Cedar St.,

Bergenfield, NJ 07621

USA

Tel +1 201 244 9026,

Cell: +1 201647 2296

email: gznomani@aol.com

 

Panama

Professional contact: Dr. Liliana Angelica Neil Burgos,

Pediatra Endocrinóloga,

Hospital de Especialidades Pediátricas,

Caja del Seguro Social. Vía España, Panamá
Tel. +507 260-1290, Mobile +507 6618 9397.

e-mail: dralilneilb@hotmail.com

 

Parent contact: Kathia Díaz Arias

San Miguelito Samaria, Sector 4b, casa 161

Panama, Tel: +507 273 9591

e-mail: angeldavid134@LatinMail.com

 

Paraguay

Professional Delegate: Dra Maria Beatriz N.P.

de Herreros

Domingo Portilo 1508

C/- Prof Fernandez

Asuncion

Paraguay

Tel: +595 21298564

Fax +595 21205719

email: Maranp-4@hotmail.com

 

Parent Delegate: Dr Alberto Benitez

Dir: Cruz del Defensor

c/- Denador Flecha-Luque

Paraguay

Cel: 0991 317225

Tel: 595 21200163

Tel: 595 21 644415

email: abovo@rieder.net.py

 

Peru

Professional delegate: Dr. Alberto Teruya Gibu,

Av.Iquitos 293 La Victoria,

Lima-Peru,

Tel. +51-1-4248007

email: a.teruya.gibu@gmail.com

 

Parent delegate: Rosalva Espino Moscoso

José Pardo 159, Urb. Astete,

San Miguel

LIMA,

PERU,

Tel. +51 1 4206367

email: respinomoscoso@gmail.com

 

Philippines

Parent delegate: Isabel Gonzalez

 

Email: izziegonzalez@hotmail.com

 

Portugal

Professional delegate: Drª Clara Loff

Hospital D. Estefânia in Lisbon,

Tel. +351 939 290 679

email: claraloff@gmail.com

 

Parent delegates: Paula Cristina de Sousa

Raimundo Barreiro Rebelo

Rua Cidade de Cabinda, nº 22 - 6º

Esq.1800 - 080

LISBOA,

PORTUGAL

Tel. +351 218 536 698,

+351 967 617 824+351 937 617 824,

email: pequenucha@sapo.pt

 

Puerto Rico

Professional delegate: Alberto Santiago Cornier, M.D. Ph.D. Ponce School of Medicine

Genetic Division,

P O Box 7004

Ponce PR 00732,

Puerto Rico

Tel. +1 (787) 840-2575 ext. 2218/2213/2156

Fax: +1 (787) 840-5698

 

Professional Delegate: Monica Valentin Figueroa, MA

Psicologa Escolar

Direccion: Bless Therapy Place

826 Ave San Patricia Urb Las Lomas

San Juan PR 00922

Tel: 787 240 2772

email: mvalentinf@gmail.com

 

Parent delegate: Elsa Alago

Urb Paseos Reales

41 Calle Alarcon

San Antonia

Puerto Rico 00690

Mobile: +1 (787) 312 7950

email: ealago13@gmail.com

 

Qatar

Parent & Professional delegate:  Maysa Serhan MD,

Al Ahli Hospital,

QGDMC ,

Doha

Tel: clinic ; 0097444082416

cell phone; 0097433002044

emails: maysaserhan@hotmail.com

mserhan2000@gmail.com

 

Address : Al waeb Str.Les Roses 1 ,

Villa 82

Doha - Qatar

P.O.Box : 25959

 

Russia Federation

Professional delegate: Dr Elena Bogova, PhD
Institute of Pediatric Endocrinology
Dm Ulyanova Str 11 Moscow Russia, 117036

+7-925-882-05-48, eabogova@gmail.com

 

Rwanda

Washington Clark Hill, MD, FACOG

Duke University School of Medicine

Department of Obstetrics and Gynecology

Maternal-fetal Medicine Instructor

Duke University Medical Centre

Kigali

Rwanda

email: dr.washingtonhill@gmail.com 

 

Saudi Arabia

Professional delegate: Dr Abdulmoein Eid Al-Agha

Associate Professor of Paediatric Endocrinology

King Abdulaziz University Hospita

Paediatric Dept

P O Box 90215

Jeddah 21589

Saudi Arabia

Fax: +966 2 640 3841

+966 2 6408353

email: aagha@kau.edu.sa

 

Singapore

Professional delegate: Dr Warren Lee

Endocrinologist

enquiries@drwarrenlee.sg

Tel: +65 6235 3678

 

Parent delegate:

Guilad Kahn

22 Jalan Sejarah

Singapore 299068

email: gk@guiladkahn.com

 

Slovakia

Professional Delegate: Dr Ludmila Kostalova

Limbova 1, 833 71.474

email: jistakiva@dfnso.sj

 

Parent delegate: Maria Benedekova

Alderova, 12,040 22 Kosice

Slovakia

Tel: +421 948 511729

email: benedekova@pwsyndrom.sk

 

Slovenia

Professional delegate: Dr. Primoz Kotinik, MD, PhD

Dept of Endocrinology, Diabetes & Metabolism

University Children's Hospital

UMC Ljubljana

Bohoriceva 20

Sl-1000 Ljubljana

Slovenia

Phone: +386 1 522 9255

email: primoz.kotnik@mf.uni-lj.si

 

Parent Delegate: Tina Volk

Stranska pot 9

1000 Ljubljana

Slovenija

Tel: +386 31 721 702

email: tinka.vovk@gmail.com

Parent Delegate:  Tina Volk,

President of Slovenia PWS Association

South Korea

Professional delegate: Han-Wook Yoo, M.D., Ph.D.,

Professor & Chairman,

Department of Pediatrics,Asan Medical Center,

University of Ulsan College of Medicine,

388-1 Pungnap-Dong, Songpa-Gu,Seoul, 138-736, Korea

 

Fax:82-2-473-3725,

Tel:82-2-3010-3374,

email: hwyoogene@gmail.com

 

Parent delegate:

Ms. Jung-Yun, Seo

6dong-201ho, hedoji-ro 107, songdo-dong,

yeonsu-gu, incheon-si,

Korea (zip: 406-743)

E-mail: junyun1004@nate.com

Phone: +82-10-9757-7689

SPINE Foundation (Argentina)

Jorgelina Stegmann, MD 

Laprida 2080, C1425EKV 

Buenos Aires

ARGENTINA

jstegmann@spine.org.ar

info@spine.org.ar

www.spine.org.ar

Phone: (+54) 011-4806-7995 / 4807-5048

 

Tunisia

Professional delegate: Dr Ridha M'RAD

Professor in Human Genetics

Dept of the Congenital and Hereditary Diseases

Charles Nicholle Hospital

Bab Soika 1007

Tunis

Tunisia

Phone: 002 1622 589536

email: rmrad@yahoo.com

 

Turkey

Professional delegate: Prof.Dr. Koray Boduroglu

Hacettepe University Faculty of Medicine

Department of Pediatrics,

Division of Genetics

06100 Sihhiye,

Ankara, Turkey

Fax: 0090 312 3115522,

Tel: 0090 312 3051173

email: kbodur@hacettepe.edu.tr

 

Uganda

Professional delegate: Dr. Edison Arwanire Mworozi MBChB, M MED

Senior Consultant Paediatrician/Honorary Lecturer Clinical Head

Department of Paediatrics abd Child Health

Mulago Hospital/

Makerere University Medical School,

P.O. BOX 7072,

KAMPALA -

UGANDA

Tel: 256-41- 542766/ 531875 (Office)Fax: 256-41-534037, Mobile: 256-772-619355

email: arwanire@yahoo.com

email: mworozi@chs.mak.ac.ug

 

Ukraine

Professional Delegate: Dr Vira Yakovenko, MD

Crimean State Medical University
Dept of Pediatrics

Asst Teacher

Paed Endocrinologist

54a Lekinsa St

Apt 22

Simferopol

Crimea

Ukraine 95000

Tel: +38 050 82 11 361

+38 063 850 02 99

email: birayakovenko@hotmail.com

 

Uruguay

Professional Delegate: Dr. Juan Manuel Jones

Ramón Estomba 3577

Prado, Montevideo

Uruguay

Tel: +598 23365066

email: jmjones@montevideo.com.uy

 

Parent delegate:María Inés Fonseca

Emilio Castelar 4440B esquina Pirán.

Torre CH Apto 502, Barrio Malvín Norte

Montevideo –

Uruguay

Tel: +0598 25227328

Cell. 097095733

E-mail: mariainesfonseca@gmail.com

 

Uzbekistan

Professional delegate: Shakhrizada T. Sultanova,

Academic Abdullaev Street 56

Tashkent,

Repulic of Uzbekistan

Te. +998 71 269 1668,

Mobile +998 90 315 7338

email: sultanova_69@meil.ru

 

Venezuela

Professional Delegate:

Parent Delegate: Alicia Magdalena Turio de Borga

Edificio Onix Piso 1 Oficina 11

Avenida Sojo ConA Avenida

Venezuela

El Rosal Caracas 1060

Venezuela

email:aliciamtborga@gmail.com

Tel: (58212) 754.0353

 

Vietnam

Professional delegate: Prof. Nguyen Thi Hoan

Head of Endocrinology-Metabolic-Genetic Department,

18/879 La Thanh - Dong Da

Hanoi,

Vietnam

Tel. +84 4 7752910,

Fax +84 4 7754448

email: Hoandung@hn.vnn.vn

 

Dr. Duong Chi Vuo

Head of Dept of Endocrinology, Metabolism & Genetics

No 18/879 La Tanh Road

Dong Da District

Hanoi

Vietnam

Tel: (84) 0900 424 2010

ailto:dungvu@nhp.org.vn

 

 

Yemen

Professional delegate: Ahmed Al-Shehari MD

Pediatric Consultant,

Head of Pediatric Departement in Thamar University,

Coordinator for Control Genetic Disease in Yemen,

B.O. BOX ;- 12715

Sanaa -Yemen

Tel: 00967711655660

email: shehari250@yahoo.com

 

Parent delegate: Yasser Abdurazak Derhim

Yemen-Sana'a-Hada'a Street

Mobile No:+967-71410700

email: yasserderham@yahoo.com

 

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Douglas House, 18b Trumpington Road, Cambridge

CB2 8AH. UK

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